Today has been one of those days that I'm just grateful to have survived.  With everything that happened today, I'm completely exhausted and fearing the future, at least what it has in store for Gavin. I spoke with Dr. Moodley's office this afternoon and let them know what happened today with Gavin's crisis. At this point they don't want us to do anything different.  We aren't going to change his meds or adjust his fluid intake. We aren't going to do anything. As a father this feels like a whole lot of sitting around and doing nothing.  Doing nothing feels wrong. I'm beginning to feel like I might be frustrating or irritating Dr. Moodley because I'm calling him when these things happen. I've never gotten any indication of this, I…

Emmett had an awesomely amazing day today at school. Actually, it was yesterday but we saw it today, so we're celebrating now.  :-) Great job Mr. Emmett John!!  We are so proud of you. :-) This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

This is Gavin's blood work from earlier today.  While this isn't related to his IVIG Infusion, it's what's required to refill his Clozapine every single time.  His Lithium level is of particular interest and thankfully, it's right where it's supposed to be.  Something else I forgot to mention is that Gavin's  lost weight again.  This month he was 118lbs at weigh-in and that's another loss.  His eating habits haven't changed, nor have his portions or caloric intake. We need to get him into the pediatrician.  This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I…

I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful.  I want to thank his nurse for doing such an awesome job.  With that said, I don't know how much more of this my heart can take.... Gavin scared me to death this morning.  This was far and away the worst I'd seen him in a long time.  The was very little warning and it hit so fast.  We had a short walk and two elevator rides to get to the infusion lab. It's roughly a five minute journey from the car to the infusion lab but Gavin needed to stop and rest three times.  Two of the three times we're involuntary breaks, meaning he physically collapsed.  He literally just fell on his…

The boys had a good morning.  Both Elliott and Emmett were very cooperative and that made things so much easier.  I wasn't sure how Emmett would be doing because he got up several times last night. I think that part of this mornings success stemmed from the fact that today was Take a Stand Against Bullying at school today.  The students were encouraged to wear blue to help raise awareness for bullying.  Either way, the boys had a great morning and I'm really proud of them both. I'm anxious to hear how their day went and what they learned today.  :-) This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help…

After lying down for a little while, Gavin's vitals seem to have stabilized. Right now he's resting and receiving an IV fluid bolus.  With any luck, we will make it through this without getting admitted again.  Lizze is making arrangements, should her presence be required. At this point, he's doing a little bit better and hopefully that means we're in the clear. Thank you for all your thoughts and prayers. This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the…

Alright, I've got a minute to ask again for your thoughts and prayers.  Gavin isn't doing good at all right now.  We made the trip to Akron Children's Hospital for his monthly IVIG Infusion.  He seemed to do okay in the car but began crashing on the way up to the 5th floor.  He dropped to the floor outside of the yellow elevators and once again while inside.  We made it to the Oncology floor and they immediately took his vitals. His BP crashed and he was very disoriented.  We got him back to his room and into bed, where he is currently resting.  Moving him is the last thing we want to do right now and so we are keeping a very close eye on him. At this point,…