Shortly after noon, Gavin will be in the outpatient infusion lab at Akron Children's Hospital. He will be receiving his IVIG infusion for this month.  This was originally scheduled for Tuesday but life got in the way. I'm not sure who will be taking him. Everything depends on how Lizze is feeling today.  Many times it's easier for her to take him, than sit at home with the two E's. My guess would be that I will be home with the boys today. For those of you wondering what the heck I'm talking about... Let me explain. Essentially, Gavin has no immune system. More accurately, he has a severely compromised immune system.  We discovered this about 2.5 years ago and Gavin has been receiving a donor immune system every month…

Elliott has had a really rough day.  He's been laser focused on collecting all the power stars on Super Mario 64 DS. Last night he collected the 150th power star and I thought, heck yeah Elliott, way to go. Turns out this would be the proverbial straw that broke the camels back. Elliott was convinced that there were 2 more stars and that all the information, from both Nintendo and the rest of the Internet were wrong. There was absolutely no convincing him otherwise. We spent quite a bit of time trying to work through this tonight. He finally went to sleep but I'm telling you it was a rough night, full of emotional roller coaster ride and tears of frustration.  I'm praying that tomorrow is a better day.  This…

Emmett drew this rather busy rendition of our house today.. Since we've been having a great deal of bad weather lately, he added that as well. We have storm clouds, rain and even wind.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

So keeping Gavin engaged with people in real life, is getting more and more difficult. At last count, Gavin's left family activities today in order to go play cards with his gang of invisible friends.  I'm torn about this whole thing because part of me doesn't want to play into this and subsequently reinforce with him that things things are real. I fear that this would lead to complications and confusion down the road. On the other hand, until we find a combination of meds that work, that effort would likely be futile anyway. At this point, he's not hurting anyone and he's happy and he's not having behavioral outbursts. He's also making his friends stay in his room so as not to confuse his little brothers. Aside from him…

Change can be uncomfortable for many people, both on and off the Autism spectrum. With that said, sometimes change is a necessity, in order to move forward.  I'm having to make some changes to this site, at least for the short term. You'll notice that ads are now present within posts and comments.  While I hate the idea of doing this, I simply can't afford to run this site anymore without them. The truth is that I've seen better days and things are tighter than ever. At the same time, the costs of this site are growing exponentially. Ads are a great way to bring in extra money to help offset the costs or hosting services.  Right now this site is paid for through September of this year.  After that…