Guy Time with my son

For dinner last night, we cooked out on the grill.  Nothing fancy but it was enough to sort cap off the day in a good way.  Anyway, Elliott was junior grill assistant.  He brushed and scraped the grill before I lit it and he even tossed a few hotdogs on, while under very close supervision.  I love spending time with the boys like this.  Much like what we actually cooked tonight, it wasn't anything fancy but it was good enough for us.  Guy time is something that's really important to me.  It's nice to have one on one time with one of my kids.  When I look back on my life, I think these will be treasured memories. I hope that my kids will treasure these memories long after I'm…

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Okay, so I over did it today

I didn't really do that much today.  I took Elliott to school, picked him up from school and ran to the store a couple of times. That's it.... My body has declared mutiny and is no longer cooperating with me. It's kind like it's shutting down and trying to recuperate.  That's great and all but I have too much to do and I don't have time to be sick.  I realize that sounds ridiculous but honestly, how many special needs parents can afford to be sick? My guess is not many. Hopefully, I'll be able to actually sleep tonight and I will feel better in the morning. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect…

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If only people with #Autism were sea lions

I read about this today and it got me thinking and subsequently a bit disheartened.  Did you know that when 1,400+ young sea lions showed up sick off the coast of California recently, we immediately mobilized and had them admitted to rehab facilities? Maybe if people with Autism were sea lions, they would get the same level of concern from the rest of the world and get the help they need as well? What does that say about us as a society? This makes me happy for sea lions but sad for people with Autism. :-( This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find…

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Operation Hope: Gavin’s behavior worsens

We got word or rather Lizze did, that Gavin's behaviors are worsening.  I don't know that it's anything catastrophic but it's getting worse. I spoke with Lizze's Mom a little while ago and it sounds like Gavin's threshold for frustration is nonexistent.  Basically, he gets frustrated really, really easily. This is leading to meltdowns more often now than I'm the past. These are meltdowns and not tantrums because there's no benefit to him doing this.  That's basically the litmus test for Gavin. There may be a combination of things at work here, puberty being one. The other issue is that his metabolism is all wonky due to the autonomic disfunction and that may impact the effectiveness of his medications. This is a very real and very serious concern. Because Gavin…

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Why I’m the luckiest Dad in the world

It's no secret that things in my life are not going very well.  I'm sick, stressed out, overwhelmed, scared and frustrated. Today hasn't been a good day at all.  However, a few minutes ago, I went to brush my teeth and was reminded why I'm the luckiest Dad in the whole world.  Apparently, Elliott knew that I've been having a rough last couple of days and while he's not one that's very open about his feelings, he just blew me away.  As I was walking out of the bathroom after brushing my teeth, I noticed something on the counter. I almost didn't notice it because it blended in so well with the counter top, but Elliott left me a note.  Not just any note either.  This is the kind of…

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Off to school without a problem

I happy to say that at least Elliott got off to school without much fuss.  He didn't really have any issues this morning outside of the usual ADHD stuff.  He's feeling better and has 1 more round of antibiotics left to combat his sinus infection. Thankfully, the day began on a good foot for him.  It always distresses me to send him to school after having a rough morning.  I hate when he feels panicked or insecure as we walks through those doors.  I can only do so much and luckily, he's at a great school that helps Elliott every step of the way.  That makes a huge difference.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any…

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Things get more and more dire each day

Who needs sleep anyways? I guess my body doesn't think it's necessary to sleep.  I just couldn't fall asleep last night.  Between the congestion and the stress, I just could find that place of peace. Part of my problem is that I'm a thinker.  I problem solve and when I can't solve a problem, I sometimes get stuck, spinning my wheels, looking for a solution.  In truth, it's actually probably more counterproductive than anything else. Right now I have a lot of reason to worry.  Both Lizze and Gavin have serious medical issues that we're only just now beginning to understand.  While Lizze's health problems aren't necessarily life threatening, they are certainly life altering. Gavin's however, are very much life threatening. I can't seem to not focus on this stuff.…

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It’s 4am and I writing this instead of sleeping

This is the second night in a row that I can't sleep.  I'm so congested and too uncomfortable to be able to rest.  I'm wondering if this is turning into bronchitis? To say that I'm exhausted would be a huge understatement. I think that the stress is catching up to me and taxing my immune system.  Typically I never get sick.  This isn't the way I would like to welcome in Monday.  :-( This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family,…

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