I thought that it might be a good idea to bring everyone up speed on everything that is going on with Gavin. I've got a ton of new readers (thank…
Last night, Gavin was on the verge of an autonomic crisis. Because we can never get reliable information from him, we have come up with a system to help. The…
I fear that we are in the verge of another autonomic crisis. We are waiting to get his blood pressure meds refilled and so he's been out for about 3…
Lizze and I have noticed something about Gavin today that we hadn't noticed prior. He seems to start complaining about his health problems, of which there are many, whenever he…
Lizze and I got Gavin a watch that monitors his heart rate. It's very simple to use. All he has to do is simply touch the bezel. He sees his…
Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying…
In but a few hours, we will be making the trip to the Akron Children's Hospital Heart Center. We will be meeting with Dr. Clark, one of the top pediatric…
Yesterday, Gavin had his monthly antibody infusion. Everything was pretty routine until about 15 minutes into the car ride. Gavin began to enter an autonomic crisis. He became sick to…
