In a few short hours, Gavin will be on his way to Akron Children's Hospital for his monthly IVIG Infusion. Lizze will likely be taking him this time because it's…
Gavin's having a pretty good day today. I can't say that I'm totally surprised because he's very capable of having good days. Lizze is at the doctors and I'm at…
I don't know what it is today but Gavin is driving me crazy. Perhaps it's because I've been sick and truthfully still feel under the weather. Gavin is being.......Gavin. He's…
Friday morning, I will be escorting Gavin to his monthly IVIG Infusion. We must arrive at Akron Children's Hospital around 9am. Unfortunately, this coincides with Lizze's appointment at the Cleveland…
Here in the Lost and Tired household, we experience a phenomenon with our oldest son Gavin that I've dubbed think to breath mode. I know I run the risk of…
Gavin's been a bit of a bad sport this morning and is spending some time in his room, not that it's a punishment. Elliott and Gavin were playing a game…
Because of Gavin's autonomic dysfunction, his doctors have him on a very, very strict fluid intact schedule. Gavin's only allowed 2.5 liters of water (only) per day. We carefully monitor…
I wanted to take a minute and update you all as to our current situation. I've briefly shared this on my Facebook page only because my site keeps going down.…