Thank God for small favors

Gavin's having a pretty good day today.  I can't say that I'm totally surprised because he's very capable of having good days. Lizze is at the doctors and I'm at…

Continue Reading Thank God for small favors

My son is driving me nuts

I don't know what it is today but Gavin is driving me crazy. Perhaps it's because I've been sick and truthfully still feel under the weather. Gavin is being.......Gavin.  He's…

Continue Reading My son is driving me nuts

Greetings to yet another IVIG Infusion

Friday morning, I will be escorting Gavin to his monthly IVIG Infusion.  We must arrive at Akron Children's Hospital around 9am. Unfortunately, this coincides with Lizze's appointment at the Cleveland…

Continue Reading Greetings to yet another IVIG Infusion

The control freak

Gavin's been a bit of a bad sport this morning and is spending some time in his room, not that it's a punishment.  Elliott and Gavin were playing a game…

Continue Reading The control freak

Welcome to my latest #parenting fail

Because of Gavin's autonomic dysfunction, his doctors have him on a very, very strict fluid intact schedule.  Gavin's only allowed 2.5 liters of water (only) per day. We carefully monitor…

Continue Reading Welcome to my latest #parenting fail