I wish I had the energy to write everything that I need to say but I just don't. This week has been a rough one. The amount of disheartening events…
I have about 5 minutes to do a down and dirty update. Right now I'm exhausted, frustrated and confused. I think I'm just done for today. :-( We met with…
I found a website called the AT Children's Project and it presented me with tons of information about Ataxia-telangiectasia. I thought I would share this and help you to better…
Today might not go bad we had originally planned. We're supposed to be at the Cleveland Clinic today but unfortunately, Gavin didn't go to school because of the reaction he's…
Tuesday's teacher note reflects that Gavin had a pretty good day. He apparently didn't fall asleep during class today and that's a great accomplishment for him. Behaviorally there was nothing…
I mentioned earlier that I met with Gavin's immunologic, Dr. Wasserbauer (Akron Children's Hospital) while at Gavin's IVIG infusion. As the title states, this was a good news/bad news/scary news…
Thanks to the amazing work of Akron Children's Hospital, Gavin's made it through another IVIG infusion, successfully. Things got a bit dicey a few times but nothing came of it. …
Gavin is currently being infused with IVIG as I write this. Today's dosage increase takes us to 25mg and a slightly longer infusion time then previously. Gavin's doing really well…