One of those lose lose situations

When you have a child like Gavin, life is exceptionally challenging.  Any one of his individual challenges would be difficult on most families.  The combination of his physical and mental…

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Operation Hope: Hurry up and wait

On Friday, I was scheduled to check in with Gavin's autonomic specialists office and touch base on how the alpha-blockers were working. The truth is that they don't appear to…

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A break is a break…right?

We will be having a day to ourselves this weekend.  We're going to be shuffling the kids around a little bit.  Gavin will be going to my parents and Elliott…

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Another day another problem

Gavin's teachers are taking note of things that happen while he's at school.  They aren't doing this every day and I need to ask about that because it needs to…

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Things get more and more dire each day

Who needs sleep anyways? I guess my body doesn't think it's necessary to sleep.  I just couldn't fall asleep last night.  Between the congestion and the stress, I just could…

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