It's been awhile since I've talked about Operation Hope. Nothing has really changed but we have made a modification over the weekend. You may recall that we decided to manage…
It's no secret that I'm struggling a bit lately. I have a tremendous amount on my plate and it can get quite overwhelming at times. Between everything going on with…
I woke up this morning in a cold sweat once again after having one of my reoccurring nightmares. I'm so stressed out anymore that I rarely have wasn't dreams. Instead…
This past week or so, Elliott has been more anxious than usual and that's impacting him on multiple levels. For starters, I was approached be the principal at Elliott's school…
Gavin finished up this month's IVIG infusion at Akron Children's Hospital. I thought I would share today's journey in the form of a slideshow (with no audio). The process was…
We've been here for 3 and a half hours so far and still have about 2 hours left in the IVIG Infusion. This procedure is painfully slow, in fact, time…
Gavin and I have arrived at Akron Children's Hospital for his missed IVIG infusion, as part of his ongoing treatment for common variable primary immunodeficiency. Gavin was supposed to receive…
In the morning, I will be taking Gavin for his IVIG infusion that he missed last week when he went into another Autonomic Crisis. My extreme hope is that Gavin…