Gavin has lost control over his body again. He was doing really well and still is behaviorally. The problems lies in the fact that he is losing control over his body and hearing voices. He is once again having conversations with Sonic the Hedgehog. He keeps hearing other voices that he doesn’t talk about but we know they are there because he is constantly asking us if we were just talking to him.
Behaviorally he is doing well. Very few if any meltdowns. The thought of sending him back to the Hospital is heartbreaking because of that. It would be easier if it were a safety issue or he was violent again. I think he would probably go back to the Cleveland Clinic. He would probably go to the Peds floor and get a full neurological work up. The movement issues had stopped awhile ago and have more recently resurfaced. It’s really hard to watch him lose control over his movements like this. We need to find him the help he needs and we need to find some answers. We need to silence the voices and give him a sense of peace….Missing school will be a problem as the traveling back and forth. As parents I don’t think that there is really a choice to be made.
I am waiting to hear back from Dr. R’s office. We will need to get him in there and see what he thinks. I really think we are running out of options.