The pulse of the #Autism community

      7 Comments on The pulse of the #Autism community


I have a great many friends in the #Autism community,  both with and without #Autism.  I look at everyone as one big extended family.

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Sadly,  I know that not everyone is treated well.  There seems to be a lot of judgements being made about people within the community, by others within the community. I was hoping we could start to address some of these issues so that we can continue on with our mission of helping make the world more #Autism aware.

I wanted to use today and sorta take the pulse of the #Autism community.  I want to know how you think the #Autism community is doing to raise awareness and support those touched by #Autism?



Below are a few questions to get the conversation started. 

1) Have you found the community to be supportive to everyone within the community,  regardless of whether they have #Autism or not? 

2) Do you find the community to be united by our commonality or divided by our differences?



3) What do you think the community could do better?

4) Do you feel the large #Autism related organizations are doing to help those touched by #Autism and their families?

5) What has your overall experience with the #Autism community been?

6) What do you think the #Autism community is doing right?

This will be a tactful,  honest and insightful discussion.  Please treatment everyone with respect. 

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Lisa DeSherliaHeatherESedlockLorcaDamonlostandtiredAspie Kid Recent comment authors

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Aspie Kid
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1) Have you found the community to be supportive to everyone within the community,  regardless of whether they have #Autism or not?    Most, but not all. There are some who hate autism and everything to do with it and simply refuse to believe there could be anything good about it. All of the people I've met with that attitude are neurotypical parents of autistic kids.   2) Do you find the community to be united by our commonality or divided by our differences?   Mostly united.   3) What do you think the community could do better?   Reach… Read more »

Rob Gorski
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 Great feedback. Thank  you for sharing.

HeatherESedlock
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HeatherESedlock

 @lostandtired 
 
I can't figure out how to get paragraph breaks into my comments. Do I have to hit return twice? or something?

Rob Gorski
Admin

 autismfather  @lostandtired  katrinamoody What are your thoughts? 

LorcaDamon
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LorcaDamon

Sadly, I'm entirely isolated in my own corner of rural America. We don't even have a Publix grocery store to carry my daughter's GFCF foods, let alone therapies and support groups. This makes me an outsider-looking-in on the autism community as a whole.   Unfortunately, this go-it-alone history of mine has jaded me. I don't have the time or energy for the latest buzzwords in autism or the most politically correct attitudes, and times that I do find myself in the company of another member of this autism world, I usually get my head bitten off for something irreverent  that… Read more »

HeatherESedlock
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HeatherESedlock

1) Have you found the community to be supportive to everyone within the community,  regardless of whether they have #Autism or not?    No, I do not find the community to be supportive of everyone. What I see are great divisions. For instance, parents of children with autism sometimes get defensive and attack adults with autism, seemingly forgetting that one day their child will be an adult with autism and they wouldn't want their child treated the way they treat us. Sometimes adults with autism give parents of autistic children a hard time for "not getting it". Of course, if… Read more »

Lisa DeSherlia
Guest

I'm glad that I found this site! As a person who is "self-diagnosed" on the spectrum, though I have a daughter with the diagnosis, I know much of this is self-generated but I don't feel totally at home in the Autism community. I think that having my scheduled evaluation done at a university's autism/neurodevelopmental disabilities center will greatly help with this. I know that some are not supporting my Change.org petition seriously or supporting it because they have issues with a "self-diagnosed" person speaking for the autism community. But I do have a daughter with the dx and she is… Read more »