Today’s gotten off to a really rough start. Lizze was up all night again and Elliott wasn’t feeling well. Everyone was in edge and Gavin needed to get to Akron Children’s Hospital for his monthly IVIG Infusion.
While it was like pulling teeth, we finally got underway.
The boys got to school on time and I got Gavin to the outpatient infusion lab a little bit early. Early is good because that means sometimes we can get started early and end earlier as well.
As far as surviving the IVIG Infusion goes, I’m referring to the entire process, from the car ride up to the car ride home.
Sometimes Gavin can’t even handle the car ride to Akron Children’s Hospital without going fine an Autonomic Crisis. In fact, that’s exactly what happened during last month’s infusion.
So far so good.
We made it here without any problems. Gavin’s vitals are done and he’s being prepped to receive the IVIG. The only thing that’s really concerning me at this point is his weight. He’s down 5 lbs from last month. He weighed in at 115 lbs. I’m not sure what’s going on but we need to get him to the pediatrician, just to be safe.
I’m hoping to be done around 1pm today, so I can be home I time to get the kids from school. I really enjoy picking them up from school. 🙂
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