What my son asked me tonight broke my heart 

There are times when I really hate being me. In order to do what’s best for my kids, sometimes I have to cause them pain. 

For the very first time in all the many years that Gavin has been receiving IVIG, he made a request of me that absolutely broke my heart. Before Gavin received his IVIG infusion tonight, he said this:

Dad, when you put the needles in my belly today, can please make it not hurt… 

Do you know how crushing that is to hear? 😢

I would do anything to not have to cause him this pain but it’s causing this pain that keeps him alive… 

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