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I’m confused but ultimately relieved after our visit to @AkronChildrens Hospital today

I’m confused but ultimately relieved after our visit to @AkronChildrens Hospital today

Let me start out by saying that this was a very good appointment and I expect nothing less from Akron Children's Hospital. They've never let us down. ☺ It's not…

Continue Reading I’m confused but ultimately relieved after our visit to @AkronChildrens Hospital today
We have a very, very important appointment with hematology at @AkronChildrens Hospital today

We have a very, very important appointment with hematology at @AkronChildrens Hospital today

We have a huge doctor appointment today. Actually, Gavin has a huge doctor appointment today. The bottom line is that's it's a huge appointment. We are finally getting into hematology,…

Continue Reading We have a very, very important appointment with hematology at @AkronChildrens Hospital today
Every single day, I lose more of my son and it hurts beyond words

Every single day, I lose more of my son and it hurts beyond words

There's so much to catch you all up on and frankly, some of it is too difficult to talk about. I've tried writing this several times now and very quickly…

Continue Reading Every single day, I lose more of my son and it hurts beyond words
Anxiously awaiting Gavin’s test results

Anxiously awaiting Gavin’s test results

I just left a message with Gavin's Gastroenterologist at Akron Children's Hospital. We're supposed to call towards the end of this week to get the results of Gavin's labs from…

Continue Reading Anxiously awaiting Gavin’s test results
Being a Special Needs parent has been so heartbreaking recently

Being a Special Needs parent has been so heartbreaking recently

I write a great deal about being an Autism and Special Needs Parent. I've done this for close to a decade now and I don't plan on quiting anytime soon.…

Continue Reading Being a Special Needs parent has been so heartbreaking recently
Why good news doesn’t always make me feel better

Why good news doesn’t always make me feel better

I just got an email from Gavin's doctors office in regards to his labs from yesterday. The results from yesterday have his Absolute Neutrophil count back up to 3.0. The…

Continue Reading Why good news doesn’t always make me feel better
The doctor called with heartbreaking news

The doctor called with heartbreaking news

I received a call today from Gavin's doctor. When I saw who it was, my stomach knotted up and my heart sank. They never call unless it's bad news. I…

Continue Reading The doctor called with heartbreaking news
As a result, we worry all the time

As a result, we worry all the time

I was able to get a hold of Gavin's psychiatrist's office this afternoon and got the lab results from his blood draw on Monday morning. I actually only got his…

Continue Reading As a result, we worry all the time
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