Some random Emmett John

So I pulled apart the top of the tub to check out the plumbing. Turns out that is may not be so tough after all. Now it's just finding the correct parts and taking it apart. Not much room to work. The main problem is finding the money and deciding if we replace the whole setup. Lizze needs something with easier handles because it hurts to use the handles on this set up. Been looking on line but I think I'll just have to go to the depot.

So we got up this morning and trying to get things done when we notice it's raining on us. So what, you say. Well the problem is that I happen to be standing in my freaking kitchen. The leak in the bath tub faucet upstairs apparently has decided to become worse through out the night. Now it's leaking through the kitchen ceiling. When it rains it pours.... Rob

Gavin is staying home today because he is really kinda struggling with the meds situation. We are going to try to get a hold of Dr. R today and figure out where we are going to go.

Lizze had her much anticipated MRI on Friday morning. This is a precautionary but necessary step because of her migraines, tremors and neuropathy. We will hopefully hear back soon because we need some peace of mind. I don't expect anything to come of this because the migraines are probably related to the firbo. She has also cat scans done and they have all been clean. Please keep her in your prayers. Rob

As the day goes by Gavin's demeanor is more and more concerning. He's actually doing pretty well, save for the occasional meltdown. The problem is he seems to be almost asleep on his feet. This is really weird because he is dropping down on some of the meds right now. He wasn't sleepy on the higher doses. He is like a walking zombie. I know I keep saying that but that's the only way I can think to describe it. Not only is he out of it but he is physically carrying himself odd. He seems more stiff or contorted then usual. He isn't always making much sense when he is talking. He is also being very dramatic about any type of physical contact. That leads me to believe he…

Why is that people find it so easy to judge. Speaking only for myself (but I know many of you have experienced this also) I have had so many people judge us without even knowing us or what we go through. We have run into this so many times where people judge us because of Gavin. It's always one of two ways. They either think we are cruel and abusive or they think we need to just discipline him more. This really used to bother me because I didn't like the idea that people thought those things about us as parents. As we face this more and more I've realized that it's simply ignorance on their parts. When you break it down to a fundamental level it's ignorance and denial.…

Gavin and Emmett John both had pretty tough days. Elliott Richard was pretty much along for the ride. Gavin ended up with oatmeal for dinner (which is actually an MST technique). The oatmeal for anyone who thinks it's cruel or mean is used as a consequence for certain behaviors that must be discouraged. Behaviors such as violence and inappropriate touching. These behaviors will get him in lots of trouble as he gets older. We love him and we don't want him to have that happen so his doctors have said it's extremely important that we deal with it now. Oatmeal is very healthy for you. He simply doesn't like it without sugar. So he gets a bowl of plain oatmeal. It's the only thing we have left to discourage these…