While I was giving my riveting speech (sarcasm)  last night at Stark State College,  Lizze was home with the boys. Unfortunately, they were less than well behaved. The highlight of the evening had to be Emmett biting Gavin on the butt.  That's right, on the butt. He actually broke the skin,  and he bit through all his clothes. For obvious reasons,  I don't have a picture to share,  but pretty ugly.  You may remember about a year ago,  Emmett had bitten Gavin on the stomach and broken the skin. Gavin needed and received a tetanus shot.  So he's okay as far as that goes.....thankfully. That doesn't however,  address the issue of Emmett biting again. If Elliott had been bitten,  he would have needed a tetanus shot and that wouldn't have…

I wanted to briefly update everyone as to the current status of Emmett's speech and OT therapies.  As you may recall, Emmett has been denied any further speech or OT because he hasn't made enough progress and so the insurance company doesn't think he will ever improve.  I don't think I need to say just how I feel about that.  Anyways,  I have formally filed for an appeal.  I figure that I will make every effort to go about this in the right way. The process was really easy and only took a few minutes over the phone. Having said that,  I'm not afraid of making this as ugly for the insurance company as possible and in a very publish way. To many kids are being denied essential services due…

As many of you know,  I was a guest speaker at Stark State College tonight for a class of education majors and preschool teachers. The topic was #Autism and this was my very first time public speaking. If any of you reading this actually sat through my talk,  I apologize.  It was pretty rough as I'm not used to speaking about #Autism in person.  Plus I was really tired from a day spent at Akron Children's Hospital. Hopefully,  it wasn't to bad.  :-) Having said that,  I think this was a really positive experience for me and for #Autism Awareness. I would honestly like to do this more often.  I think that I would do a better job going forward as I would be better prepared. What a great way…

At this very moment,  I'm recovering from a crazy busy day and preparing for my guest lecture tonight at Stark State College. I'm also,  literally,  buried under two dogs.  This is what life looks like from my perspective,  at this very moment.. :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

We met with the infectious disease specialist today at Akron Children's Hospital.  He was really cool and Emmett really liked him. Basically,  he's taking a very conservative approach,  and I really like it. Basically,  before we assume anything and while we are waiting for the blood work and chromosomal micro array results to come back,  we stop the Prednisone. He wants is to document his temperature twice a day,  every day at the same time.  We are also supposed to take pictures of Emmett's tongue as well.  Basically,  we are wanting to see what his body's average temperature is throughout the month.  We also need to see what his tongue looks like throughout the month as well.  This will show us if there is a correlation between his body temperature…

Sometimes we have the dogs in their kennels when we step out for a few minutes. It doesn't hold Maggie,  because if someone comes to the front door,  she simply breaks through.  Anyway,  Bella and Maggie are in separate kennels on opposite sides of the room.  When we come home,  a few minutes later,  this is what we find. Keep in mind these are heavy duty steel kennels. Before After **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I think that this is an important question because many of us deal with this every single day. What has your overall experience been with #Autism and your child's education? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

We will be seeing the infectious disease specialist today at Akron Children's Hospital.  The reason for this visit has to do with Emmett's fever disorder.  This disorder and the horrible mouth sores that come will each flare up are out of control and not responding to the medications.  Case in point.  Emmett is on his 3rd fever cycle in the last month.  We have never had back to back to back flare ups,  ever. We typically see about 3 weeks between these cycles. This tells us that something is not right.  The only treatment is Prednisone. However, he can't safely take Prednisone as often as he would need to in order to manage these cycles. Prednisone suppresses the immune system and leaves him susceptible to things like pneumonia,  which he…