I've been up since 5am with Emmett.  He has literally been screaming,  almost the entire time. If you listen closely,  you can hear the fibers of my sanity snapping like twigs under a heavy foot step. I'm being driven closer and closer to this place called crazy.  I wish I could just have one normal normal day. Are there any normal days left in the bag?  If so,  could I please have one **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android

Lizze had her final headache infusion session,  yesterday afternoon. She basically underwent 12 hours of pretty hardcore narcotics being pumped into her via IV. This was split up over two days and the sole purpose was to break her five weeks old migraine. She can only have this done one time a year,  at least as far as I know. It was almost exactly a year ago that she had this done to break a migraine that she had that lasted for months. The good news is that it appears to have worked.  I say appears to have worked because she still pretty heavily medicated.  We should have a better idea of where we stand as time goes on.  The downside to this is that it only treats the current…

It thought I would share a bit of the lighter side of the Lost and Tired family story.  This is a picture of my tiniest little minion,  Mr.  Emmett John.  He's all tuckered out after a really long day. He's peaceful,  quite and so friggin' cute.  I love him so much and these moments are among my most favorite. I just wanted to share this with all of you because I share a great deal rather depressing things,  all true but depressing nonetheless. This picture demonstrates that we do have our quite moments as well.  Thank you for following our story.  I know it's not always rainbows and butterflies but it is our truth and I'm honored that you find it worth reading. Our that note,  I wish you all…

Daddy,  can I come with you?  How many times do we here that in the course of the day?  Please note that you can insert Mommy into that as well.  I didn't forget any of you amazing mothers out there :-) I hear this question countless times a day.  Majority of the time it's Emmett asking me the question. Anytime I go to the store,  Emmett always asks if he can come with me.  Other times,  when the whole Lost and Tired family is in the car and all I have to do is run into the store for a prescription,  he wants to come as well.  It will literally take 2 minutes to run in and out.  By the time I get him out of his car seat,  navigate…

Elliott seems to be experiencing benefits from the Risperdal.  He seems a little more relaxed and had a warning free day at school today.  I'm really hoping the trend continues and he experiences more and more relief from his extreme level of anxiety. It's only been a few days and maybe this change is just a coincidence.  Either way,  I'm happy to see the improvement,  regardless of the cause... :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android

Every time change presents problems for the Lost and Tired family.  Personally,  I have adjusted to daylight savings time but my kids haven't. Typically,  it takes several weeks for them to adjust.  Their internal clocks are all screwed up,  so they don't sleep through the night.  At times they either can't fall asleep or they wake up at some ungodly hour.  Needless to say,  the boys don't sleep,  we don't sleep. We tried things like preparing them for the time change ahead of time but it never seems to make a difference. We just have to hunker down and wait this one out.  I realize that easier said than done but sometimes this just isn't much that can be done. How do your kids handle the time change? **Thanks for…

Emmett John has been busy,  working hard on his next Lego Creation.  This morning he dug out his Mega Blocks and built a dog. I'm not sure why he decided to do this but he's really proud of himself. I applaud his creativity and determination.  Oddly though,  he didn't name it as he usually does.  **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android

I can't,  for the life of me keep my eyes open this morning. I'm not sure why I'm so tired but I definitely am. I'd love to take Emmett for a nap but I have to wait for the gas to be turned back on.  This is only the second time that we have had a utility shut off but it sucks anyway. Thankfully it's in the 50's,  so the house isn't to cold. I need a nap in the worst way imaginable but it's never gonna happen,  at least not today.... :-( **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android