We have arrived at the oncology/hematology infusion lab at Akron Children's Hospital. The waiting room is pretty amazing. Gavin is nervous but pretty relaxed, all things considered. The infusion is scheduled to begin at 12:30 pm. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

In less than 3 hours Gavin will begin his first antibody infusion. I hope and pray that this will help address at least some of the problems. We can't go much further until we get his physical health stabilized. So this is a big step forward for us. I'm told that after the infusion he can still go to school and do all the things he normally would so long as he continues with the infusion therapy. So here's to hoping that this will help Gavin to feel better and all of us to move forward. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired…

Gavin's Health Crisis: Where we stand? I have been spending some time today trying to play catch up on the blog. Things have been so crazy around here lately that I have not kept up as well as I would like to. The health issues going on with Gavin have been pretty much all consuming lately. However, I still feel it's important to share our story because it not only helps me to sort of work things out but it also puts valuable information out there. I truly believe the best way to raise awareness about anything is by sharing your personal experience and putting a face with a particular situation. In our case we are not only dealing with the challenges associated with Autism but also very serious health situations. While…

We learned last week that Gavin has a severely compromised immune system. His IgM and IgG antibodies are less than half of what they are supposed to be. He is currently being treated for pneumonia and chronic sinusitis. They also believe there is an asthma component as well so he has started with an inhaler this past weekend. It actually seems to help. Gavin says it's easier to breathe now so that's good. We didn't know he was having trouble before but I'm not sure he realized that either, if that makes any sense. At this point we don't know for sure what's causing this but we do know that he now needs monthly antibody infusions. I believe it's called IV IgG and basically, they take donor antibodies and infuse…

Welcome to part 3 of my What is Occupational Therapy mini-series. Today I'm sharing some more of Emmett's OT (Occupational Therapy) sessions with you. I hope this helps you to have a little better understanding of some of the things that take place during an OT session. Keep in mind that these sessions are geared for Emmett's particular sensory needs, so it may be different for your child. In this video Emmett is doing Bounce and Crash. This helps Emmett with his need for deep pressure or impact type sensory needs. I think this is by far Emmett's favorite OT exercise. My goal here is to allow people to experience things that they may not otherwise have a chance to experience. I also want to help parents that may be new to this journey…

Emmett has spiked a fever again and I just had to give Gavin a breathing treatment. I couldn't get Gavin to cooperate with the treatment as he was to way to out of it. I'm not sure how much he actually got. I'll have to try again in 4 hours. Oh....and my allergies are going nuts for some reason. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

Lizze's best friend from high school, Yvette, came over today and brought her daughter Sayge. Lizze and Yvette haven't seen each other since shortly after Gavin was born. This was a long overdue reunion and hopefully the first of many. The boys loved playing with Dagger, especially Emmett. I haven't seen Lizze this happy in a very long time. I'm excited that she has this part of her life back. Now all we have to do is get Nikky, Lizze and Vette together. Lizze would absolutely love that. We never, ever have company. No one ever comes to visit us, so this was a very pleasant experience for all involved. I was a pleasure meeting you Yvette and Sayge. - Lost and Tired Post by Wordpress for Android via Nexus…

I meant to share this the other day but with the new Gavin crisis it got lost in the shuffle. So here it is. Lizze has a thing for pens. She has hundreds of pens and markers. Each one has a special purpose. Anyway, she has this one pen with little post-its built. They are basically little strips of paper. Emmett got a hold of it and started pulling out the paper. When I caught him I got it away from him so he didn't waste the paper. If I had realized what he was doing I would have let it go. As it turns out, Emmett was using the little post-it strips to spell out his name. When I took the pen away he got upset and wiped most…