I'm going to keep this pretty short as we have our hands full today. When I can, I'll do a more detailed post but for right now this is all I'm capable of. We met with the Immunologist this morning at Akron Children's Hospital. If you recall we were referred there when it was discovered that Gavin's lgM and lgG were low. We thought that the our biggest problem was going to be scratch testing. We couldn't have been more off target if we tried... We didn't understand what low meant. As it turns out Gavin lgM and lgG are extremely low. They are so low in fact that he will at least need monthly infusions going forward or we can put him on a pump and at home at…

I mentioned the other day that Gavin has an appointment with the Allergist/Immunologist tomorrow morning. We actually got the paperwork in the mail this afternoon. We glanced over it briefly, thinking we would fill it all out tonight after the kids go down for the night. One of the things we missed while glancing over the paperwork this afternoon was the paper explaining about the scratch testing they intend to do during the visit. When I read that, I immediately got sick to my stomach. I know exactly how this is going to go and it won't go well. Gavin will not like laying down on his stomach and not being able to see whats happening. They will have to do it that way because Gavin will never allow them to it…

I'm going to be very honest with you all here. Even at the risk of sounding like a less than stellar father. I think that it’s a good thing to share our feelings, so I'll lead by example. All right, with that said, Gavin is driving me absolutely insane. God love him, because it isn't his fault but that doesn't make it any easier to deal with. In fact it's actually worse.because of the whole guilt factor side of things. Gavin is acting more and more child-like every day. By that I mean he is literally acting like a much younger child almost like Emmett..actually. The problem aside from the obvious is that Gavin is much bigger and stronger so that complicates these tremendously. The other thing I have been…

Gavin fell again tonight, only this time he hurt himself. He fell and scraped his rib cage against a wooded box. Part of me feels like we should limit his movements or wrap him in bubble wrap. I know that sounds comical but I don't know what else we are supposed to be doing. Seriously, should we limit his movements? I know we can't wrap him in bubble wrap but he keeps hurting himself. I'm also concerned that he may accidentally hurt someone else. For example, today Gavin was working on his Mario story and he started dropping his pencil. While he was clumsily trying to get it, he inadvertently flung it across the room. It almost got me in the face. It was a total accident but still....we may…

We met with Dr. H, our kids pediatrician about Gavin's sudden rash. His best guess is they are bug bites. They aren't hives or chicken pox either. He thinks Gavin just had a delayed reaction to the bug bites He also said that the ring around them isn't uncommon. We have sine cream to put on them and that's about it for now. Alright, one crisis avoided and one more to deal with. Gavin is going on Wednesday to the immunologist in Akron. Something is wrong with his immune system and we need to figure out what the heck is going on. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct.…

Gavin is getting a bit anxious and is very uncomfortable. They put us in an isolation room because we don't know for sure what it is. I am getting more and more concerned as Gavin continues to present with new symptoms. On the plus side, because I am trying to remain more positive, the more symptoms he has perhaps the better chance we have of identifying what's going on. I'm trying to force myself to be positive, so Gavin doesn't worry and I can keep us all moving forward. I'd be lying to you all if I said it was easy to remain positive because it most definitely isn't. Hopefully we will actually get some answers today and not more questions. - Lost and Tired Post by Wordpress for Android…

Gavin is continuing to get worse. So far this morning he has fallen both up and down the steps at least twice. He has also fallen off the couch and out of chair. The other problem is that he is literally dropping things the moment he picks them up. I don't know what to do anymore. Everything is going down hill quickly or at least that's how it feels. I have been trying to keep Gavin for walking around because he is just hurting himself. It's frustrating for him but I have to keep himself safe. I wish we could get to the bottom of this and figure out what the hell is going on. I can't explain what it feels like to helplessly stand by while your child deteriorates…