I had a phone meeting with the Director of the Autism Society of Greater Akron this morning.  We were discussing the setup of a parent group in Canton, Ohio. My thought would be to run a group in a very similar fashion to what I do on this site or Facebook page. I would want this to be something that actually benefits the parents. I would love to hear your thoughts on what would benefit you personally.  Remember, this isn't necessarily about kids with Autism, but instead about the parents that raise them.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Today has not gone well. Emmett refused to go to school this morning.  We had to physically  carry him to and from the van. He's not complaining about his mouth hurting so we wanted him to go. One of the things that worry us is that he will miss to much school, as a result and since there is no medical reason to keep him home, we are trying to send him to school. When we got to the school, his teacher was able to get him excited about being there and all was once again right with the world. Have I said how much I love Summit Academy? This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit…

While we were at Dr.  Patti's tonight, we learned the nature of the CPS inquiries about Lizze and I.  Basically what happened was someone filed a complaint about me because of a blog post I wrote last month.  I don't even remember what the whole post was about but it was one that I shared that sometimes I feel like I can't go on. The second post was one in which I expressed that I was frustrated and angry with Gavin because of his behaviors that day.  The context of that post was that I was trying to help people understand that it's okay to feel these things.  What matters the most is how you choose to deal with those feelings.  This is not an uncommon message to read here.…

The boys have therapy again tonight and afterwards, it's straight to bed. I'm completely exhausted and I'm ready for the day to be over.  I haven't heard back from CPS but I did hear back from John's Hopkins today and I have some news on that front.  Look for that a bit later tonight. I just want to make it through the rest of the day and I'll get to the rest of the updates.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Yesterday, while at his IVIG Infusion, someone came into Gavin's room and did art projects with him. This was the result of one of them... :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

This is not a criticism of Summit Academy Schools at all.  This is merely something I have noticed and fund myself a bit confused.  To me, this seems to be a unsensory friendly lunch menu, especially since it's at a school for children with Autism.  I actually spoke with the school and they said that it's based on the states nutrition guidelines, as per state law. I totally get that.  Elliott and Emmett will eat almost nothing off of this menu and I was wondering if your child with Autism or SPD would enjoy the offerings.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Alright.... I'm not one to sit around and wait.  I prefer to deal with things head on and sorta cut it off at the pass.  When I learned last night that CPS had been calling our kids psychologist, inquiring about Lizze and I, the only thing I could think to do is call CPS directly and inquire as to why they are asking questions about us.  I don't want to wait until they show up on my front porch again.  I'm also of the mind that if you have questions about my family, just ask. Anyway, I called and left a message asking if we were under investigation.  I would just rather know. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me.…

Coming off the shock of another possible CPS investigation, neither Lizze or I slept well last night.  This morning, Emmett proved to be a huge handful.  So much so in fact, we knew that there was likely something else going on.  It all began because he wasn't tolerating the uniform shirts.  To be more specific, he isn't tolerating the three buttons at the top of the polo shirt. He absolutely refused to put the shirt on today.  He was so upset that he was dry heaving.  We were confused because he's been fine up until now.  I had to get the other boys to school and so we looked at one last thing before I left and sure enough, we discovered a problem.  He has another sore on his tongue,…