OMG......  It's so incredibly and cruely ironic that all I look forward to doing during the day is going to sleep and yet when the time comes, I can't. Lizze and I are both too stressed out to sleep and of course, Lizze also has all the menopausal things hindering her as well. In four hours one of us has to be on our way to get Gavin to Akron Children's Hospital for his IVIG Infusion. I don't think that there's any wiggle room on this, although there may be some.  If we absolutely must, we could probably get him in early next week and that would still be within our window. It's going to come down to simply one thing.  Can either one of us safely get behind the…

In a few short hours, Gavin will be on his way to Akron Children's Hospital for his monthly IVIG Infusion. Lizze will likely be taking him this time because it's far easier on her to go than stay home will Elliott and Emmett. The E's and I will be hanging out in the morning, while Lizze and Gavin pay their visit to the outpatient infusion lab. We are quickly approaching the 3rd anniversary of Gavin's primary immunodeficiency diagnosis and his very first IVIG Infusion. Come the first week of January, it'll be 3 years down and a lifetime left to go. The keyword being lifetime. Finding out when your son is 11 years old that he no longer has a functioning immune system is devastating. There is no cure and…

I wanted to try something a little different and even unrelated to the main topic of this site. The Lost and Tired family is a family of very little means. As such, we don't get out as often as we would like to.  Having said that, I thought it would be really cool to demonstrate all the amazing things you can show your kids, without ever leaving your yard. It's cost effective, fun and educational, all at the same time. I'm calling this little mini-series, Backyard Adventures. What I'm going to do is attempt to show you some of the really cool things that Mother Nature has to share with us. All of these things will be found in my own backyard, literally.  I'm going to use this and try…

Check out Elliott's latest Phineas and Ferb inspired Lego creation.  It's actually a Phineas-droid from the Phineas-droid and Ferb-bot episode.  On a side note, this picture was snapped literally 2 seconds before it tumbled out of his hands and onto the floor. :-( This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

SPEAK EASY Editor: Eric Walterewalter@whyy.org August 1, 2013 By Aja Beech Does Tom Corbett actually care about Philly schools? Corbett plan finds Philly schools roughly $127M in new funding Gov. Corbett outlines plan for Philly school funding The…

So I've been up and moving around pretty well this morning and now afternoon. Lizze made it to and from her appointment this morning and even got a nap afterwards.  She's now banished me to our room so I can rest and write a little bit. I wanted to share something with those of you that perhaps don't follow my Facebook page. I asked my followers this morning a question and the response I received blew me away.  I asked how they handle being sick with a special needs child at home? You can follow the comments on my page fb/lostandtiredblog. [fb_embed_post href="https://www.facebook.com/lostandtiredblog/posts/653100048035819"/] What I read in the 50 or so comments made within a short amount of time was amazing.  Amazing and sad, all at the same time. Essentially,…

Gavin's having a pretty good day today.  I can't say that I'm totally surprised because he's very capable of having good days. Lizze is at the doctors and I'm at home with the boys. I'm feeling better than I did yesterday but for some reason, I'm completely drained and without any energy. I haven't really been eating since I got sick and I'm sure that has something to do with it. Right now I'm just really grateful that boys are getting along right now because I wouldn't have the energy to pull them apart. Thank God for small favors. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email,…