We received a call last night from Lizze's Mom. Apparently, Gavin completely freaked out on them. He was playing Sonic on his tablet and must've gotten frustrated or something. Her…
In the morning, I will be taking Gavin for his IVIG infusion that he missed last week when he went into another Autonomic Crisis. My extreme hope is that Gavin…
Gavin and I have arrived at Akron Children's Hospital for his missed IVIG infusion, as part of his ongoing treatment for common variable primary immunodeficiency. Gavin was supposed to receive…
We are at Akron Children's Hospital and they got Gavin back right away. During the trip Gavin's heart rate went down. When checked during intake it was 102 bpm. When…
We heard back from the wonderful Doctors at the Cleveland Clinic. They do not want him to make the trip to Cleveland unless Akron Children's Hospital transfers him directly. They…
There was just a shift change here at Akron Children's Hospital. However, someone must be looking out for us because the doctor that just came on did his residency at…
I wanted to take a minute and update you all on how Gavin is doing, health wise. Since tightly controlling his fluid intake and starting his new meds, Gavin seems…
I spoke with Gavin this afternoon and he informed me that he had a drop in his heart rate today...but it went back to normal....well normal for him anyway. My…
