Autonomic Crisis: What’s next
On August 28th, Gavin returns to the Cleveland Clinic for most of the day. In the morning, Gavin will have skin biopsies done. My understanding is that they want tissue…
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Autonomic Crisis: What’s next
Autonomic Crisis: Not sure what to do
The other shoe is beginning to drop and we can see it coming. It's like one of those dreams where you're trying to run away but you're stuck in place…
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Autonomic Crisis: Not sure what to do
Confessions: I feel like everything is falling apart around me
Confessions: I feel like everything is falling apart around me
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Confessions: I feel like everything is falling apart around me
A father’s breaking heart
I had this great plan to have this video blog up and ready for you all this morning and due to technical issues, that's been delayed by a few hours. …
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A father’s breaking heart
He simply can’t come home
Something I don't talk about very often in my outlook on the future. It's not that I'm hiding something from all of you, it's just that I don't like to…
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He simply can’t come home
Autonomic Crisis: Update 08/10/2012 (11am)
Alright, I just got off the phone with Lizze. Basically, Gavin crashed on the car ride up to have his monthly antibody infusion. His heart rate was all over the…
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Autonomic Crisis: Update 08/10/2012 (11am)
Autonomic Crisis: Update 08/01/2012
I wanted to update all of you on Gavin current condition in regards to his autonomic disorder. Gavin just had his 3rd of 4 blood draws for this week. Incidentally, …
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Autonomic Crisis: Update 08/01/2012
My heart is breaking once again for my son
Another twist of the knife and my heart is breaking once again for my son….
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My heart is breaking once again for my son
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