We went from freaking out and potential disaster to a major victory….

This is how we infuse Gavin in with #IVIG at home. Complete with pictures and detailed explanations.

Please keep Gavin in your thoughts and prayers today

Gavin’s having a rather trying day and it’s taking its toll….

I’m feeling pretty demoralized and I’m worried that I won’t be able to figure any of this stuff out. I’m worried about letting everyone down and failing my family

The big concern right now is fluids. He needs to not only in get them but he also needs to keep them down. Obviously, we’re going to have to increase his fluid intake today and with any luck, this will pass without consequence.

Please know going into this post that I blame only myself for what I’m about to share. I’m not proud of this but it’s a pretty big deal and there’s no way to deny the impact this is going to have on my family.

We were at Akron Children’s Hospital all day. We got there around 8:30am and finally got home around 5pm….. It was such a long day, full of anxiety, fear, stress and pure emotional drain.