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The first solid piece of good news this week

The first solid piece of good news this week

While I'm unsure of what to make in regards to Gavin labs, there is one piece of good news we know of for sure. Ruby's visit to the vet went…

Continue Reading The first solid piece of good news this week
Why good news doesn’t always make me feel better

Why good news doesn’t always make me feel better

I just got an email from Gavin's doctors office in regards to his labs from yesterday. The results from yesterday have his Absolute Neutrophil count back up to 3.0. The…

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Exhausted, stressed out, worried and overwhelmed

Exhausted, stressed out, worried and overwhelmed

Gavin's feeling better this morning and the boys got off to school without much trouble. Lizze is having a rough morning because she had a really difficult day yesterday and…

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My days don’t get much harder than this

My days don’t get much harder than this

It’s been the longest, most stressful day I’ve had in a long time. There are two main reasons for my current level of distress and both are related to Gavin but not his fault.

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The doctor called with heartbreaking news

The doctor called with heartbreaking news

I received a call today from Gavin's doctor. When I saw who it was, my stomach knotted up and my heart sank. They never call unless it's bad news. I…

Continue Reading The doctor called with heartbreaking news
When your special needs kid turns 18, there’s a ton of shit you have to worry about

When your special needs kid turns 18, there’s a ton of shit you have to worry about

We just finished meeting with Social Security. Gavin has to requalify for permanent disability now because he's eighteen years old. The appointment only took about an hour and that's not…

Continue Reading When your special needs kid turns 18, there’s a ton of shit you have to worry about
I’m clinging to the last bit of sanity I have

I’m clinging to the last bit of sanity I have

The morning has been unbelievably stressful but we've been hitting the targets so far. Emmett and Elliott are at school but that didn't come easy. I had to walk Emmett…

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Daddy’s in timeout and it’s a teachable moment

Daddy’s in timeout and it’s a teachable moment

Despite all the positive thoughts and optimistic approach to this morning, it's become a fucking nightmare. Emmett is freaking out, Elliott is not being super cooperative and Gavin won't stop…

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