I live in constant fear of my kids regressing. I experienced that horror with Gavin when he was about 4 years old. Over the years,  Gavin continues to regress. Out…

This has been a really long weekend and it's only Saturday...and Elliott and Gavin were at Grandma's last night. Emmett is just really struggling with many things right now. He…

While I wasn't present for this particular infusion,  Lizze tells me that Gavin did really,  really well.  He behaved well and his body tolerated the infusion itself quite well also.…

As soon many of you out there can relate to, the Lost and Tired family never makes plans because life is a moving target.  We are constantly having to change…

I'm so tired that I can't sleep.  Sounds like and oxymoron, right?  I'm living proof that there something to that.  It's very possible to be so tired that you can't…

Today has been one of those days I would not want to ever repeat. My stress level is absolutely through the roof. When Emmett wouldn't respond to us yesterday,  that…

If you could please say a prayer for Emmett or just keep him in you thoughts I would really appreciate it. I have been largely absent today because we had…