I think most of us have heard the saying, they come in threes. I'm hear to say that there is definitely some truth behind those words,  at least as far…

This is more for the techies out there that like video games.  :-) I have been playing video games since before Nintendo was even know the radar. I was always…

I'm feeling quite overwhelmed as of late.  We keep receiving more and more bad news.  I mean,  bad news is probably the wrong word choice but it's pretty darn close.…

This was by far the worst Gavin has done at an infusion.  I had taken Elliott to the cafeteria to eat lunch while they were putting the IV in.  He…

We have finally made it over to Oncology for Gavin's 9th antibody infusion. The infusion was scheduled to begin about an hour ago, so we had to make special arrangements…

I'll provide more details later but we are dealing with seizures,  at least with Gavin.  Gavin's were more obvious. Elliott is needing a 24 hr EEG to verify.  Elliott had…

I'm at the neurodevelopmental clinic at Akron Children's Hospital,  with Elliott and Gavin. Elliott is actually doing pretty good today.  He isn't freaking out as is usually for him. However, …

Akron Children's Hospital,  here we come. Elliott seems to be fine this morning. Emmett on the other hand,  is fighting his fever again. It looks like I'll be taking the…