I have a confession to make. I have been putting off calling the Dysautonomia Clinic at NYU. I should have called on Monday but I was scared. Right now I…
Yesterday, while at his IVIG Infusion, someone came into Gavin's room and did art projects with him. This was the result of one of them... :-) This site is managed…
Today is going to be crazy busy. I have to get two of the three boys to school in the morning and then get Gavin to Akron Children's Hospital before…
Let me start by saying that I'm very grateful for everyone's concern. I think that it says a lot about our community when other wise strangers, can relate enough to…
It's been a really long time since I could say that I have honestly felt hopeful. I'm feeling pretty damn hopeful right now. Everyone had a good day and Gavin's…
Good morning everyone. I have a few announcements before getting into this post. First of all, our Internet will be installed today. Actually, I installed it this morning but Time…
We just got off the phone with Akron Children's Hospital and have secured Gavin's IVIG Infusion date. Unfortunately, it's a bit farther out than I would have liked to see,…
This week is going to be focused mainly on Gavin. Our priority is getting him to his IVIG Infusion as soon as we get the date and time. We'll probably…