As I lead my family into the first full week of June, we are facing many unknowns. We have this whole child protective services thing weighing pretty heavy. This should…

This has been a really challenging week for me personally. I did quite a bit of driving and sat through my share of appointments, including Gavin's IVIG infusion for May.…

After spending the last 2 days with Gavin, it's very clear that his speech is continuing to regress. I don't know how many times he's gone to talk to me…

When I mention about being concerned about Gavin, this is one of those moments.  Yesterday, while at his IVIG infusion, things got a bit dicey and I was growing worried. …

Today might not go bad we had originally planned.  We're supposed to be at the Cleveland Clinic today but unfortunately, Gavin didn't go to school because of the reaction he's…

I mentioned earlier that I met with Gavin's immunologic,  Dr. Wasserbauer (Akron Children's Hospital) while at Gavin's IVIG infusion. As the title states, this was a good news/bad news/scary news…

I wanted to update you all as to what has gone on in the current team building quest at the Cleveland Clinic.  We got a call today from endocrinology and…

When you face the daily challenges that my family does, it can be quite hard to remain positive.  It feels like every time I turn around, something else goes wrong. …