We are quickly approaching the point where Gavin needs to go back to the hospital. He has lost touch with reality and talking to people that aren't there. He is have both audio and visual hallucinations again. The facial ticks have returned and he is being weaned off the meds he was on. This presents a major problem because he gets worse as the meds are removed. It's a double edged sword. He is living almost completely in his imagination anymore and it's actually very confusing and frustrating for everyone. He's also afraid that we are going to send him back. We explained that it wasn't a punishment but he doesn't get that. He is telling Elliott that if he has anymore meltdowns that someone is going to come and…

I'm sharing this because I think it's important for people to understand just how bad things can get when dealing with Autism. Things are really bad now. Gavin is pushing us to the brink of insanity. All he does is talk nonstop. He has no control over it now but I'm to the point I don't want to hear his voice. His movement issues have resurfaced once again and seem to be getting worse each day. The doc's are cut his meds back slowly already in response. However, he was on an extremely low dose of medication. This isn't good as it make it even more difficult to medicate him going forward. Emmett John is becoming more aggressive towards Elliott Richard and more destructive in general. He screams all the…

So in the span of the 30 minutes Emmett John has broken both my xbox 360 and Lizze's netbook. I'm so tired of not being able to have anything safe in this house. I know it sound petty and selfish but the 360 was all I had left. I have sold everything  else of any value in order to take care of my family. I'm not complaining about having to that because I wanted to. My family comes first but sometimes it's nice to have something like that to escape life with for a little while. Emmett John is driving me crazy because he is into EVERYTHING. There are very few places in this house he cannot get to. If you stop or correct him he just screams and screams…

I'm not going to lie, Gavin is driving me crazy. He will not stop talking., even when I'm clearly not paying attention. He tells me every single thought that runs through his head. Most of this stuff doesn't make any sense to me. He's regressing into his imaginary world more and more. I haven't even been writing because I"m just to exhausted anymore. Things are pretty bad for us at the moment.

Emmett John saw his Gastroenterologist yesterday and he now has an endoscopy scheduled for the 9th of September. We did not think that was going to happen. We thought they would toy with is reflux meds. The doc also went a step further and pulled EJ off his reflux meds which means he will be screaming all night. The sleepless nights began last night and it was a bad one. EJ is in so much pain when off the meds that Lizze and I are going to keep him on them and get a second opinion. This doc had a God complex and didn't really listen to us at all. Skipping everything else and going to something rather invasive doesn't sit well with us. We are going with our gut…

I have to try to keep a sense of humor about everything or I'll completely lose my mind. That said, Gavin is manic. He can't stand still of even stop talking. He is talking so fast you can't follow what he is saying and on top of that he is jumping from topic to topic randomly. I have actually gotten a headache from listening all day. I feel bad but I just can't take it right now. We will finally be getting a break because my mom and sister are taking the 2 youngest to the zoo for the day. I don't think it will end up being much of a break. We talked to the nurse in the psych unit today while at the hospital for Emmett John and…

We spoke with Gavin's doctor and decided to increase his meds at bedtime just a bit. I'm doubtful this will work because he is only on 1mg of resperidol and it took 8mg the last time he was on it. We are supposed to call if things get worse or by Wednesday which ever comes first. My fear is he's going to have to go back. The safety issues here are very serious. Gavin is now following these hallucinations around the house. He is talking about defending himself now. What if one of the kids becomes involved in whatever Gavin has going on? Or worse Gavin sees them as something that is out to get him. Not only do we have to worry about Gavin's sanity and peace of mind…

Lizze and I are already considering the idea that Gavin will have to go back to Akron Children's Hospital. He is clearly not stable and we can't help him. No amount of "Gavin it's not real" seems to cut it. We are also going to have to consider safety issues for everyone. Gavin needs relief from this ASAP. We are calling the doctor first thing in the morning. Please pray for him. Posted with WordPress for BlackBerry.