So far, Monday hasn't been too kind to us. We found out that Gavin has lost OT, PT and Speech.  Lizze still isn't feeling well and Emmett woke up this morning with a mouthful of sores. He's got a round of Benadryl and Advil on board and seems to be feeling a little bit better, at least for now. Over the past few weeks, Emmett appeared to be going into several fever flares that ended up amounting to nothing.  With any luck, this one will follow the same path.  I really try to be the bigger person.  Sometimes I succeed and other times, not so much.  In the case of Monday's, I just can't seem to be as forgiving.  I usually just end up frigging hating Monday's.  How about you?…

I just got a phone call from Condorde Kids, the place the boys go for OT, PT and Speech. Bad news. Gavin will no longer be receiving treatment because insurance says that he's too old and his scores aren't bad enough. Gavin's on disability and has been for most of his life.  Up until a few months ago, that meant that he was on straight Medicaid. Recently, everyone on Medicaid was forced to switch to an HMO provider. Our options were very limited and we had to go with whoever would cover the most.  At the time, everything was fine and Buckeye was handling everything, they were a pain in the ass, but it worked.  Not only has that changed and they won't cover his therapy anymore, they also wondering…

  Gavin's passion for drawing is increasing every day.  Here is his current time favorite drawing he's done.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Welcome to Monday, the single most hated day of the week. I hope that Monday treats you all well and proves to be a positive and uplifting experience for everyone.  So far so good on my end.  I'll begin my day of making phone calls around 9am, when all the doctors are in.  Good luck to all of you. :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

While outside today, Elliott discovered a Cicada still inside its shell. I wanted to show the boys something really cool. We moved this little guy to a safe place, inside a deep bowl, perfect to observe it emerge from it's shell. I explained the process and promised to take pictures while they were sleeping tonight, so they could see what was happening.. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

This week is going to be focused on Gavin once again.  We have to figure out what's going on with him. Tonight we saw just how much worse he's getting.  He managed to take the cap off of a bottle of water, while he was eating dinner.  However, he was unable to put the cap back on.  Lizze had to put it back on for him.  After dinner he fell while going up the stairs.  Thankfully he's okay, a little banged up but otherwise okay. We learned something new last week. I meant to tell you about this when it happened but never got around to it. While we were at orientation last Tuesday, Gavin shared something with us, that we were previously unaware of.  He's afraid of the steps…

I'm getting more and more worried about Gavin. It seems like he's slipping even more each day. The only way to describe this so it makes sense is to say that he's becoming more and more simple. There's less and less complex thoughts or conversations from him. We know this isn't medication related. We also know that there very likely isn't anything we can do. This appears to part of whatever the ongoing neurological process is that's resulting in regression. I don't know what to do. I don't really even know who to call. We've already been told that we can't fix what's wrong with his brain. We also don't know how bad things are going to get either or even how quickly. It sounds weird but we had kinda…