Hey sleep deprived #Autism Parents, what would you do in this situation? 

Lizze and I are getting a small break this afternoon because the boys are going to a cousins graduation party with their grandparents. Our goal is to go to family functions more often but at this point, we’re both exhausted.  

I’ve barely been able to keep my eyes open all day and I’m certainly not in a position to drive anywhere.  

It’s really tough to find some semblance of balance because straight up exhaustion is a seemingly insurmountable problem, that’s a constant in our lives.  

Lizze and I are far from the only parents facing this type of problem. I’d love to hear how other Autism or special needs parents handle situations like this.  



If there was a family function and you had a choice between going as a family or staying home and going to sleep, while your kiddos went with their grandparents, what would you do and why? 

28 comments

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    • Evan on November 24, 2017 at 5:20 am
    • Reply

    I send his neurotypical brother out solo with his grandparents as often as I can. I won’t send my autistic son because no parent or grandparent has any extra idea of how much attention has to be focused on him AT ALL TIMES. Just because he looks like he is self stimulating at I’ve moment doesn’t mean he won’t be in the street the next moment.

    Our idea of rest is splitting the 2 boys up for the day. 1-on-1 life is SO much easier.

    • Evan on February 19, 2018 at 2:55 pm
    • Reply

    I send his neurotypical brother out solo with his grandparents as often as I can. I won’t send my autistic son because no parent or grandparent has any extra idea of how much attention has to be focused on him AT ALL TIMES. Just because he looks like he is self stimulating at I’ve moment doesn’t mean he won’t be in the street the next moment.

    Our idea of rest is splitting the 2 boys up for the day. 1-on-1 life is SO much easier.

    • Moe on June 26, 2016 at 8:18 am
    • Reply

    I thought you said the boys were sleeping through the the night now?

    1. I’m confused. Your question has nothing to do with this post.

        • Moe on June 26, 2016 at 11:43 am
        • Reply

        Yes it does. If the boys are sleeping through the night how are still sleep deprived?

        1. You’re reading into things again. At no point did I say I was asleep deprived. Please try to stay on topic

            • mindfulmom on June 26, 2016 at 5:21 pm
            • Reply

            Rob
            You state above that you and Lizzie are both exhausted and titled the entry “sleep deprived autism parents”.
            You further state you can “barely keep your eyes open” (due to the exhaustion). The above commenter was not off topic.
            Yikes…

            1. Actually, I said “Hey Sleep Deprived Autism Parents”.. I was reaching out to sleep deprived Autism parents.

              As for the rest,” I can barely keep my eyes open” and referring to be exhausted has nothing to do with sleep. My kids run me ragged and even if I slept 10 hours a night, I would still be exhausted.

              I never said anything about me not sleeping and I was simply not allowing anyone to put words in my mouth.

              There are a handful of commentors that seem to thrive on twisting what I said or making bold assumptions. The comment or in question is one of 3 or 4 that frequent this site and like to do that.

              Frankly, I’m tired of it. They drive traffic and that’s great but I won’t let someone put words in my mouth.

              Yikes… 😉

    2. I’m confused. Your question has nothing to do with this post.

        • Moe on June 26, 2016 at 11:43 am
        • Reply

        Yes it does. If the boys are sleeping through the night how are still sleep deprived?

    3. I’m confused. Your question has nothing to do with this post.

    4. You realize that even if I could sleep 10 or 12 hours of sleep per night, the boys still run me ragged throughout the day, causing exhaustion. Ask any other Autism parent and they will likely understand.

    • Moe on February 19, 2018 at 2:55 pm
    • Reply

    I thought you said the boys were sleeping through the the night now?

    1. I’m confused. Your question has nothing to do with this post.

        • Moe on February 19, 2018 at 6:08 pm
        • Reply

        Yes it does. If the boys are sleeping through the night how are still sleep deprived?

        1. You’re reading into things again. At no point did I say I was asleep deprived. Please try to stay on topic

            • mindfulmom on February 19, 2018 at 8:07 pm
            • Reply

            Rob
            You state above that you and Lizzie are both exhausted and titled the entry “sleep deprived autism parents”.
            You further state you can “barely keep your eyes open” (due to the exhaustion). The above commenter was not off topic.
            Yikes…

            1. Actually, I said “Hey Sleep Deprived Autism Parents”.. I was reaching out to sleep deprived Autism parents.

              As for the rest,” I can barely keep my eyes open” and referring to be exhausted has nothing to do with sleep. My kids run me ragged and even if I slept 10 hours a night, I would still be exhausted.

              I never said anything about me not sleeping and I was simply not allowing anyone to put words in my mouth.

              There are a handful of commentors that seem to thrive on twisting what I said or making bold assumptions. The comment or in question is one of 3 or 4 that frequent this site and like to do that.

              Frankly, I’m tired of it. They drive traffic and that’s great but I won’t let someone put words in my mouth.

              Yikes… 😉

    2. I’m confused. Your question has nothing to do with this post.

    3. I’m confused. Your question has nothing to do with this post.

        • Moe on February 19, 2018 at 6:08 pm
        • Reply

        Yes it does. If the boys are sleeping through the night how are still sleep deprived?

    4. You realize that even if I could sleep 10 or 12 hours of sleep per night, the boys still run me ragged throughout the day, causing exhaustion. Ask any other Autism parent and they will likely understand.

    • L. on June 25, 2016 at 4:07 pm
    • Reply

    Our little one doesn’t tolerate being away from home for things like that, so we have people come to us by hosting the event, or we just don’t go. We have lost plenty of friends over this, but are doing the best thing for him right now.

    1. I’m sorry but I also totally understand.. Thank you for sharing.

    2. I’m sorry but I also totally understand.. Thank you for sharing.

    • L. on February 19, 2018 at 2:55 pm
    • Reply

    Our little one doesn’t tolerate being away from home for things like that, so we have people come to us by hosting the event, or we just don’t go. We have lost plenty of friends over this, but are doing the best thing for him right now.

    1. I’m sorry but I also totally understand.. Thank you for sharing.

    2. I’m sorry but I also totally understand.. Thank you for sharing.

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