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Gavin keeps losing weight

I’ve not talked about this in a while but as it’s become a problem once again, it’s time. Gavin is losing weight after maintaining for a most of the year. He’s not losing crazy amounts of weight but he’s lost all he’s gained. We have an upcoming GI appointment and we’re going to discuss the …

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Round 3 of blood work for Gavin

It’s been a long day but a pretty good one. I didn’t write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time …

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Gavin gets his final dose of the #COVID #vaccine today

It’s gonna be a hectic day. I have a two hour meeting after lunch and it should finish up just in time for me to get Gavin to the health department for his second dose of the Pfizer COVID vaccine. I’m a little concerned about how Gavin is going to handle the side effects. More …

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Please keep Gavin in your thoughts and prayers

I’m going to make this quick because my brain is completely fried and the rest of me is equally as exhausted. Gavin’s labs came back today and some of the results appear to be very concerning. The reason I say appear to be concerning is because I’m not a doctor and I have only a …

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Gavin got really sick tonight

We had some moments today but overall, I feel like we had a good day. I wasn’t feeling quite as overwhemled as I have been and I was able to get some groceries delivered this afternoon. I feel very lucky to have had that all work out today. Unfortunately, that’s where the good news ends. …

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So Gavin started running a low grade fever tonight

It’s been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He’s very much …

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My #autistic son gave himself a haircut today

I know some of you may not get how unbelievably awesome this is but I’m sure you’ll be excited for Gavin nonetheless. Gavin has made it very clear that he wants to live with peers or other people his age, likely walking a similar path in life. Lizze and I have been talking about this …

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The coolest thing happened today

As the title states, the coolest thing happened today. I’ve been talking about Gavin’s ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG Infusion supplies delivered every month. He organizes them into kits and even does the infusions on his own. I have almost zero involvement in the …

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