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Round 3 of blood work for Gavin

It’s been a long day but a pretty good one. I didn’t write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time …

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Please keep Gavin in your thoughts and prayers

I’m going to make this quick because my brain is completely fried and the rest of me is equally as exhausted. Gavin’s labs came back today and some of the results appear to be very concerning. The reason I say appear to be concerning is because I’m not a doctor and I have only a …

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Gavin’s labs came back and it’s mostly good news

Let me start out by stating that I’m absolutely overwhelmed. The last few weeks have been incredibly challenging for me. The last 2 weeks in particular, have been much worse because I’ve been so worried about Gavin’s health. I have an update for you but not really an explanation because I don’t know that we …

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The coolest thing happened today

As the title states, the coolest thing happened today. I’ve been talking about Gavin’s ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG Infusion supplies delivered every month. He organizes them into kits and even does the infusions on his own. I have almost zero involvement in the …

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Gavin got really sick tonight

We had some moments today but overall, I feel like we had a good day. I wasn’t feeling quite as overwhemled as I have been and I was able to get some groceries delivered this afternoon. I feel very lucky to have had that all work out today. Unfortunately, that’s where the good news ends. …

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Some of Gavin’s labs are coming in and they’re still very concerning

It’s been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there’s a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin’s lab results to come back from yesterday’s repeat lab work. …

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When scrambled eggs are so much more than just scrambled eggs

I know, this is the weirdest title ever but I promise it’ll make sense. I’ve been an autism parent for almost two decades and I know how easy it can be to lose hope, especially when things are really challenging. We all need reminders from time to time and that’s okay. encourage you all to …

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A child trapped in a man’s body

My kids are driving me bonkers today. They’re fighting with each other over stupid, pointless things. It’s almost like they’re fighting just to fight. I just defused an argument between Gavin and Elliott that was very quickly exculating. While this wasn’t stupid or pointless, it was completely avoidable. Gavin had been doing something, on purpose, …

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