Jun 18 2022
I know, this is the weirdest title ever but I promise it’ll make sense. I’ve been an autism parent for almost two decades and I know how easy it can be to lose hope, especially when things are really challenging. We all need reminders from time to time and that’s okay. encourage you all to …
Sep 19 2020
I’ve not talked about this in a while but as it’s become a problem once again, it’s time. Gavin is losing weight after maintaining for a most of the year. He’s not losing crazy amounts of weight but he’s lost all he’s gained. We have an upcoming GI appointment and we’re going to discuss the …
Nov 30 2020
It’s been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He’s very much …
May 10 2022
I had a conversation with someone today (did a video about it here) and I remembered a bit more about why I started doing everything I do. It was a reminder to me that while evolution and growth can be positive things, it’s important to stay true to your roots. I’ve been thinking alot about …
Aug 31 2020
It’s been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin’s situation because I have some news. After a many phone calls and several attempted workarounds, Gavin’s new lab orders were faxed to Akron Children’s Hospital. By the time we got there, it was pushing …
Aug 29 2020
I heard from Gavin’s doctor this afternoon and I’m not surprised by the approach we’re taking. Basically, Gavin’s labs are messed up enough that we need to verify their accuracy. The plan is to redo his labs on Monday. The results will trickle in either that day or the following. If everything is fine, then …
Oct 03 2020
It’s been a long day but a pretty good one. I didn’t write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time …
Aug 05 2023
This week past week, there was an issue with Gavin’s transportation to and from work. His transport under the current plan expired last Friday and I didn’t know. Gavin is managing most of his life and all his supports work directly with him and I’m largely out of the loop. Gavin forgets to tell me …
