#Autism is more than the sum of its parts

This question may seem weird, especially coming from me.  However, I think it's not only interesting but important to learn from each other. If I asked you, what is #Autism? How would you answer that? The reason I ask is because as we try to spread #Autism Awareness, this is something that we should all think about.  How would you explain to someone what #Autism is? Would you be very clinical and state the symptoms? Would you quote statistics? I think that they would both be correct.  However, I personally think that autism is more than the sum of its parts. For me personally, autism is devastating, amazing, perplexing, beautiful, fascinating, exhausting and insightful, all at the same time. I think that autism is best described by the individuals experience…

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It’s only 5am

It's only 5am and both boys are bright eyed, bushy tailed and at each others throats. I'm throughly exhausted but have to get Elliott to school, Lizze to her doctors appointment and Gavin to his. I guess the old saying is true.  There's no rest for the weary....

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Piggy Toes

I took this picture the other day and never got around to sharing it.  Emmett was laying upside down with his head on the trampoline, his feet in my face and his hands in a box of Angry Bird crackers. I couldn't help but grab a picture.  I love his little piggy toes.  :-)

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Cole Eye Center: We meet again

We have arrived at the Cleveland Clinic's Cole Eye Center for Lizze's appointment. She's really scared of what we are going to find out.  In personally really nervous myself and I handle that by joking around.  Not always something Lizze appreciates.  I'm trying to respect that but again, I'm really nervous myself.  :-(

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Operation Hope: Retuning to The Cole Eye Center

This afternoon, Lizze and I will be returning to the Cleveland Clinic. This time to the Cole Eye Center.  We actually had Gavin there about 2 years ago and they are amazing.  Lizze is going because she has what is known Macular Holes.  This is what the Cleveland Clinic says about Macular Holes.  The eye is often compared to a camera. The front of the eye contains a lens that focuses images on the inside of the back of the eye. This area, called the retina, is covered with special nerve cells that react to light. These nerve cells are very close together in the middle of the retina where the eye focuses the images that we see. This small part of the retina is called the macula. Sometimes the…

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No worse for ware

We finally arrived home and we're all in one piece.  Some of us are more whiney than others but all in one piece.  This was a good appointment and one that put our minds at ease a bit. The pediatrician says that Elliott’s height and weight are just fine and not to worry about it.  In fact, he's grown about half an inch since September and only lost 1 lb.  That's really good for a kid on this particular ADHD medication.  He said that he's not sure why the Nutritionist was so worried about his height and weight but as far as he's concerned, Elliott's fine.  That's something really good to hear because we have enough to worry about.  Now we have to make a decision about the anti-depression medication. …

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Please keep Elliott in your thoughts and prayers

We had to pick Elliott up and take him to the pediatrician's office. The entire 30 minute drive he was absolutely hysterical. Elliott no longer wants to leave the house.  Most of the time, getting him to leave for school is hard enough. Clearly, he's not in a good place.  Lizze is battling an unforgiving migraine but she came along anyway because this wouldn't be a fun trip. Mr. Emmett John was not cooperating in the office so I'm sitting with him in the car while Lizze is meeting with the doctor.  God only knows how it's going in there and I'm really worried about Elliott. Please keep him in your thoughts and prayers as we do our best to help him....

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Putting aside typical gender roles

All this talk about cooking had me wondering something.  Who does the cooking in your family? In the Lost and Tired family, we don't have what is likely considered a typical family dynamic.  Because of our particular situation and the overwhelming amount of health issues, we have basically abandoned gender roles. As the man of the house, I do the cooking, mostly because I really enjoy it.  I also do laundry, dishes and bathe the kids.  I've been known to repair clothes and I'm usually the one to go grocery shopping.  This is because Lizze and I are a team.  Because of her health issues, she is limited as to what she can physically do.  As her teammate, I automatically pick up the slack and when she's able to, she…

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