It's pretty safe to say that any day beginning at 5am with your child screaming bloody murder, isn't going to be a good day. That's how things are shaping up for us today. Emmett John came into my room at a little after 5am, screaming about something. I couldn’t understand what he was saying. He may be starting a new fever flare. We'll have to check that out when he calms down.
I was wondering if your child with or without #Autism have a favorite song? I was listening to Tears in Heaven by Eric Clapton the other night. Emmett was in a really bad place and very much overstimulated. He climbed up on my lap and feel asleep listening to this song play over and over again. It seems to really relax him now when he's upset about something. Most times, when he's really upset, he will scream if we try to play music. However, this is a recent exception to that rule. I don't know what it is about this song, perhaps the acoustic guitar, but he finds this very calming. I was wondering if your family had something like this as well? I wanted to get a feel for what…
Something occurred to me the other day, after learning about Lizze's eye problem was more serious than I thought. I was doing some research about exactly how macular holes affect your vision. Basically, they affect your forward vision, meaning they don't impact peripheral vision. Essentially, if Lizze looks at a straight line, it looks fuzzy and broken. The line will appear to be almost dotted. Anyway, it occurred to me that if something is affecting her vision, especially in that manner, could that be what's behind this unforgiving migraine cycle? The reason I'm wondering about this is because these Macular Holes appeared within the last year or so. She didn't have them in her previous eye exam from about a year and a half ago. They did however, show up…
I didn't realize that the #Autism Blogroll page was down. I fixed it now and you can begin adding your links again, I'm really sorry about that. I have been getting emails today asking me how to add the links, I didn't realize the page was down. :-) It's all fixed. Visit this link for more information: The 2013 #Autism Blogroll
Welcome once again to the #Autism Blogroll for 2013 I've brought back my #Autism Blogroll for 2013 and we are starting fresh. If you added your link in the past, you should do so again. Every year I have to purge the database because there are simply too many links. So it's time to add your link back. Read below for more information. Remember, this is open to any person, organization or business that has anything to do with #Autism or Special Needs Parenting in general. If you are a resource or company that provides products that benefit the special needs community, you're encouraged to add your link as well. I like helping people, especially those touched by #Autism and their families. Blogging has been a big help to me.…
The boys are going to be visiting their great grandmother Gene this afternoon. Elliott is staying behind because he's not feeling well this morning. It's already been crazy today. Lizze is at the doctors, Best Buy is on its way, Emmett and Gavin are leaving and I had to get the house ready. I also realized that we are quadruple booked tomorrow and I have to make some scheduling changes. Gavin has his monthly infusion at 9 am, which is the same time as our next wraparound meeting. It also happens to be about the same time as Lizze's next appointment at the Cleveland Clinic and Gavin has to see Dr. Reynolds at 4pm. We have to try and bump Gavin's infusion back a few hours because each wraparound meeting…
This is way off topic but it does pertain to my life. We bought our TV in Feb of 2009 for like $1,200 at Best Buy. It's served us well since then but has been developing problems. The problems revolve around these thick black bands that run vertically across the screen. They are very obvious on lighter color screens. Anyways, we have a service/replacement plan that will cover the repair/replacement of our TV. Geek Squad will be arriving this afternoon to deliver a diagnosis and let me know what we are dealing with. I'm pretty excited because I think it will need to be replaced and we will get that value of what we paid for the TV in store credit. I was looking yesterday and for the same price,…
Gavin is back home until Friday because he's still off of school and Lizze's parents are going back to work. This is really difficult because as a temporary solution, nothing more permanent is in place yet. This means that there will be quite a bit if back and forth. This is a problem because no one can get adjusted to anything before it all gets changed again. Right now it's like a constant state of chaos. I misunderstood the schedule and wasn't expecting Gavin home tonight. Anyone familiar with a RAD child, knows that even though you love them with all your heart, you have to mentally prepare for them to come home. We were struggling with the 2 boys already tonight and Gavin arrived home. I asked him to…