The E's stayed with my parents and Gavin with with Lizze's mom.  Lizze and used our alone time to meet with Dr.  Patti tonight.  It wasn't the uplifting evening we usually get,  most other Tuesday nights. Tonight's topic,  as you have probably already guessed, was Gavin. This was a very open and honest conversation about Gavin's current state and what direction we are heading in? This is not a discussion that any parent enjoys having about their child. However,  it has become necessary to put all the cards on the table, so to speak and talk about the big pink elephant in the room. What everything boils down to is this.  What is actually happening with Gavin and what,  if anything can we do? Before I go into this,  I…

Apparently,  the road to recovery for Bella,  is paved with countless trips back and forth to the friggin Vet. That's right,  Bella was back into the Vet's office this afternoon.  In fact,  we had to cancel this afternoon's therapies as a result. We noticed that there was some bleeding going on and that made us very concerned.  The 50 mg of benadyrl only slowed her down for an hour or so and her activity level is interfering with the healing process.  Thankfully,  everything actually checked out okay.  The antibiotics are helping and the blood is not anything to be concerned about.  The interior of the incision is healing nicely.  On the outside there is a little gap that made us think that it was separating. In fact,  she may actually…

I suppose the title is self-explanatory but just in case. :-)   So many of you have contacted me and said that Lost and Tired describes how you feel on many occasions. However, we have never really discussed how you handle feeling Lost and Tired. When you find yourself feeling that way, what do you do? I know that breaks are very often out the question. Is there a favorite song you listen to? Maybe a show you watch? Do you talk to someone? I was just wondering, because I don't even know what to do sometimes. At times, I'm listen to music or perhaps more obviously, I blog. I'm always looking for new ideas on how to better cope with what life brings my way. Maybe we can all help each other.......

So far this morning, everyone is in a pretty decent mood. Lizze is at the doctors and I'm manning the fort. We have a very busy day, full of therapies, therapies and more therapies. My hope is that today proves to be survivable. I've learned to have realistic expectations. I'm not looking for today to be a great day, I'm just looking to survive it. I realize that I could probably aim a little higher, but why set myself up for failure. :-)  

In case you haven't noticed yet, Lost and Tired has received a facelift. I have been using the same theme for almost 2 years now and I decided it was time for a change. I don't think this is a drastic departure from what you are used to. However, it does afford my much more freedom to work. I hope you all like the new look. I wanted to get this done before my birthday on the 24th of August. As you can see, I was able to accomplish that goal. I'm if the change has caused you any undo stress. We're all creatures of habit. Lost and Tired is continuing to grow and I needed a theme that will grow with me. :-) Feel free to share your thoughts and opinions…

We had to contact the Vet's office this evening because the sedatives aren't working and we figured out why. When Bella is away from Emmett,  she will actually sleep.  However,  when he's around her,  she is very much his service dog. We noticed this today.  We also noticed that Bella is hypervigilant around Gavin,  especially when Emmett's in the same room. We brought this to the Vet's attention.  They told us that they hadn't even thought of that but we are absolutely right.  That would explain why she isn't resting and is fighting off the sedatives. They explained that 99% of the animals put on these meds would just sleep forever and recover quickly. Because of Bella's bond with Emmett, she not allowing herself time to recover.  We can't safely…

Rob keeps asking me to write a guest post for him about how My Life Beyond Labels came into being. I’d love to write that guest post for him. I’d love to write that post for myself! (Lord knows I’m starting to lose track of all the posts I either need to write or I’ve promised y’all. {lol}) But this post is important. This is a post that must be written and so, I will write it. Some of it now. Some of it later. Please visit My Life Beyond Labels let me know what you think. I'm still doing some remodeling, but it's come a long way. :-)   Untitled All of my life I’ve been a label. A stereotype A classification Treated Heartlessly Cruelly… Sub-human. Because I am different. People fear That which is different. That…

Another night of walking is going to be missed.  Another chance of getting healthier down the drain. The reason for this is simply life. Lizze is having issues tonight in the form of the same or similar autonomic symptoms as Gavin.  Her heart rate is irregular and bouncing between a tachycardia and a bradycardia.  She been getting very dizzy, light headed and nauseous.  I can't exactly leave her home with the boys.  Plus,  Gavin just had another meltdown. Those of you with challenging home lives can probably relate to the near impossibility of trying to get out of the house to go to the grocery store,  let alone try and squeeze in 5 miles as often as possible. I have never really had a wishlist before.  However, I really,  really…