Homecoming 07/16/2012 (2pm)

Gavin jas had his MRI and is ready for discharge. However, things have been delayed because, they had to use a special medication to sedate him because of what they believe are underlying mitochondrial issues. It is taking Gavin forever to wake up.  Once he wakes up,  he can leave. He has not been treating Lizze with much respect,  since he has been feeling better.  That's pretty much the status quo though.  He can be very rude and disrespectful to Lizze.  He says things to her that if I hadn't witnessed myself......, I'm so grateful that he is feeling better but there is no excuse for his behavior,  whether it be at the hospital or at home. Things are going to have to change around here,  starting with attitudes.  I…

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Gavin’s coming home: Update 07/16/2012 (9am)

I just spoke with Lizze this morning again.  Gavin is scheduled for his MRI at 10:10am this morning.  However,  because of his history of PICA,  they want to do an abdominal X ray first to ensure there are no medal objects in his system that rip through his insides during the MRI. Lizze also explained that Gavin has had a couple episodes of possible apnea.  We don't know the exact cause but his O2 sats dropped to about 80%.  Lizze had to physically shake him and make him take a deep breath before his sats returned to normal.  We have no idea what happened but it's possible that this could cause a delay in his return home.  In this case. I would be all for a delay because,  we don't…

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Autonomic Crisis: Update 07 /16/2012 (7am)

Gavin should be coming home at some point today.  We will know more around 8am.  Elliott is beside himself with excitement over the thought of seeing his big brother. My guess is that he will be released sometime this afternoon. I think that they still want to do an MRI before he leaves. I'm not exactly sure what they are looking for but I'm sure there is a reason. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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Autonomic Crisis: Update 07/16/2012 (6am)

Gavin should finally get released today. I don't know what time though. It will be really nice to have our family whole again. Gavin has had a rough 6 days and I'm looking forward to putting this all behind us. Thank you so much for all your love and support during this difficult time.? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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Fun can be had without spending a dime

One of the things I did with the boys this weekend was take them to the park and let them stretch their legs. We went to the McKinley monument and walked the stairs.  The boys had a great time and worked up a sweat. It was fun for all of us. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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I got a lot accomplished, if I do say so myself

I've been trying to get some things accomplished while Lizze and Gavin were at the hospital. Today was particularly productive.  I spent time with my boys.  We saw the first 25 minutes of the new Ice Age movie. The boys,  napped this afternoon and I spent that few hours making my world famous potato soup.  It's Lizze's favorite and I thought it would be a nice welcome home present for her. I also was able to take the boys to the park and get them a little work out on the steps of the McKinley monument. They cooled off afterwards by playing in the sprinkler with the dogs. Heck,  I even got some dishes done as well. I'm especially proud of the soup though.  It's really good,  if I do…

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The boys and their dogs have fun

I wanted to share this because you don't have to spend money to have fun. All you need is 2 dogs that love to fight water and 2 boys that love to spray them. For a little bit today,  I felt like a normal family.  I know that sounds bad but I don't mean it that way. By normal I mean,  for once,  autism wasn't a factor in how the day went.  With 3 boys,  all with autism,  days like this are few and far between. Typically,  someone is having a rough day or is overstimulated.  In Gavin's case,  we very often have extremely disrupting and destabilizing meltdowns. These meltdowns tend to throw everyone off for most of the day. When these things don't occur,  I feel like a normal…

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Autonomic Crisis: Update 7/15/2012 (3pm)

Gavin will not be coming home today as previously thought.  He will however, be home tomorrow, assuming all goes well. He will be receiving an MRI,  either while there or as an outpatient. The current school of thought is that he has a stomach bug.  While they can't prove that,  they also can't rule it out either.  They believe,  at least in theory,  that this stomach bug set into motion a chain of events that ended with Gavin in an autonomic crisis.  It does explain everything in a nice neat package,  however,  I'm leaning towards not buying into this,  at least 100%. The reason I question this is because Gavin just had his antibody infusion and so his immune system should have been fully charged and ready to fight off…

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