I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful.  I want to thank his nurse for doing such an awesome job.  With that said, I don't know how much more of this my heart can take.... Gavin scared me to death this morning.  This was far and away the worst I'd seen him in a long time.  The was very little warning and it hit so fast.  We had a short walk and two elevator rides to get to the infusion lab. It's roughly a five minute journey from the car to the infusion lab but Gavin needed to stop and rest three times.  Two of the three times we're involuntary breaks, meaning he physically collapsed.  He literally just fell on his…

The boys had a good morning.  Both Elliott and Emmett were very cooperative and that made things so much easier.  I wasn't sure how Emmett would be doing because he got up several times last night. I think that part of this mornings success stemmed from the fact that today was Take a Stand Against Bullying at school today.  The students were encouraged to wear blue to help raise awareness for bullying.  Either way, the boys had a great morning and I'm really proud of them both. I'm anxious to hear how their day went and what they learned today.  :-) This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help…

After lying down for a little while, Gavin's vitals seem to have stabilized. Right now he's resting and receiving an IV fluid bolus.  With any luck, we will make it through this without getting admitted again.  Lizze is making arrangements, should her presence be required. At this point, he's doing a little bit better and hopefully that means we're in the clear. Thank you for all your thoughts and prayers. This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the…

Alright, I've got a minute to ask again for your thoughts and prayers.  Gavin isn't doing good at all right now.  We made the trip to Akron Children's Hospital for his monthly IVIG Infusion.  He seemed to do okay in the car but began crashing on the way up to the 5th floor.  He dropped to the floor outside of the yellow elevators and once again while inside.  We made it to the Oncology floor and they immediately took his vitals. His BP crashed and he was very disoriented.  We got him back to his room and into bed, where he is currently resting.  Moving him is the last thing we want to do right now and so we are keeping a very close eye on him. At this point,…

Sometimes I have to really look to find the silver lining.  I really try to focus on at least one positive thing from each and every day.  It's not always easy, especially on the not so good days.  With that said, I want to say that sometimes the only victory is living to fight another day.  That's the case for today. Today started out rough and as I'm writing this, I'm sitting with Emmett, who woke up, had a little meltdown and went back to bed.  I'm trying to help him fall back asleep.  At the end of the day, I have to say that the silver lining is the fact that we all survived.  We're all safe and together.  That's what I'm choosing to celebrate as I sit here…

In the morning, I will be making the trip to Akron  Children's Hospital with Gavin.  This trip will find us in the outpatient infusion lab, where Gavin will receive treatment for his primary immunodeficiency. This treatment comes in the form of an IVIG Infusion. Essentially, they take donated human antibodies and infuse them into Gavin, to bolster his severely compromised immune system. So far, it's kept him from getting seriously sick and with any luck, it will continue to do so. Please keep Gavin in your thoughts and prayers.... This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of…

Surprisingly, Elliott was very much in the mood to take pictures today.  He wore his karate gi at school and is ever so excited to have done so.  This is spirit week and the kids were supposed to dress up as something they aspire to be when they grow up.  Elliott chose to be a Martial Artist. When he got to school this morning, Sensei had already laid his gi out.  Elliott changed and then wore it for the rest of the day.  For those wondering, Martial Arts is part of the curriculum at Summit Academy Schools.  I can't say enough about this because it has such a positive impact on these kids. Sensei teaches the kids to push through their obstacles and helps to build self-esteem. They also learn…

Lizze had her appointment with neurology this morning.  I drove her there and waited in the car because she wanted to do this on her own.  She didn't actually see her doctor, but instead saw his PA.  The PA is actually someone I went to medic school with and Lizze has a fantastic relationship with her.  Anyway, Lizze got all her refills and they made a few changes to her meds, most notably her anti-depressants. Lizze has had her migraine for almost 2.5 years now and that was the main topic of conversation. There is basically one procedure that she has yet to agree to and that's Botox. Having said that, her migraine is so bad that she is scheduled for another headache infusion. This is a 3 day long…