I have a confession to make.  I have been putting off calling the Dysautonomia Clinic at NYU.  I should have called on Monday but I was scared.  Right now I feel sick to my stomach and utterly helpless.  I was afraid to call NYU because I was scared to death of what they would tell me about Gavin.  Deep down, I had this nagging feeling that this was going to be another dead end and I simply couldn't face it. We've hit so many dead ends already. I was also afraid that they would want to see him and there would be no way for me to get him there.  I worked up the courage to call NYU this morning and my fears were confirmed. They won't see him.  Logically,…

I'm trying something new today.  It's called the Autism Awareness Minute.  Let me know what you think.  :-) https://www.youtube.com/watch?v=pYyHhBZMtc8&feature=youtube_gdata_player This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Lizze and I dropped the boys off at school this morning.  Everyone got ready and out the door with little or no issue. Gavin however, is just off today.  He's not having behavioral issues but he's just not making a whole lot of sense. I didn't capture it in this picture but when the Gavin walked through the door to the school, he let the  door slam in Emmett and Elliott's face.  That's very unusual for Gavin.  Normally, he's nothing if not polite and always holds the door for those behind him.  Even one of the teachers came out and opened the door for the E's and then spoke with us for a minute.  We were both reacting to the very same thing and she said that she would remind…

Lizze and I took the boys to the park today before therapy.  We had a mixup with the times and found ourselves with about an hour to kill.  We decided that we'd go to the park, walk the track and let the boys get some wiggles out.  I don't know about your kids but mine have wiggles to spare. O_o I have to give props to Lizze for coming along.  She's been having a rough week with all the weather changes and this was probably the last thing in the world she wanted to do.  That said, she did it anyway....and I'm really proud of her.  I know it wasn't easy and she's in a lot of pain but she did it.  :-) The boys had a really good time…

No matter what, we never give up on our kids, Gavin's no exception. Even if it takes a million attempts to help Gavin remember how to perform every day tasks, we're going to try it a million times. Today I took Gavin with me to fill the water jugs. This isn't uncommon and I've shared this a few times before.  My goal with bringing him along, is that one day, he'll be able to do this by himself. My hope is that a day will come when I can bring Gavin to Clearwater and he can buy the water tokens, as well as fill up the jugs.  This may seem like a really weird goal, and I suppose it is.  However, peel back the surface and this is about Gavin…

I went to grab Elliott at school and take him to Concorde Kids for occupational therapy.  I was on time, albeit a bit early. Go me! The school called for Elliott and when he emerged from downstairs, he looked like someone had killed his puppy.  There were tears streaming down his face and he was quite upset.  I asked him what was wrong and he said they were just about to begin Martial Arts when they called him to leave. That's why he's been so upset about going back to OT. I wish he would have said something because I would have slammed on the brakes and addressed this right away.  Elliott is very verbal but at the same time, doesn't reveal what's bothering him. Instead, he tends to come…

In a little while, I will be retrieving Elliott from school and taking him to occupational therapy. I'm hoping that it goes better today than last time.  Two weeks ago, Elliott refused to leave school and it made for a bit of an unpleasant experience. This time though, I'm only picking up Elliott.  My Mom will be grabbing Gavin and Emmett at 3pm today so we don't have to pull them out early.  :-) I'll let you know how it goes.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

The boys got off to school without a single hitch.  Everyone did awesome and Emmett even helped me drive them to school, by telling me how my driving was.  I think he was a bit critical because when he wanted me to go faster and faster, I stayed at the speed limit. When we got to the school, the new principle was there to give each of the boys a high five as they walked through the door. Awesome..  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me