Consequences

We just got off the phone with Akron Children's Hospital and have secured Gavin's IVIG Infusion date. Unfortunately, it's a bit farther out than I would have liked to see, because they are booked solid. Gavin will be infused next Monday.  Yes,  it's a week out and yes that concerns me. However, there isn't anything that we can do at this point. Gavin will be fine, it just pushes his schedule from the beginning of the moth to the middle of the month. This kind of thing can happen and I could spend all day beating myself up for having to reschedule in the first place. We felt at the time, it was the safest thing to do.  Lizze and I hadn't slept in over 36 hours and could barely…

5 Comments

Pictures from our Sunday afternoon trip to the playground

Lizze and I took the boys to the playground Sunday afternoon.  I want the boys as active as humanly possible.  Exercise is so important and we want them to establish healthy habits at a very young age.  It's also beneficial for then from a sensory angle as well.  All the running, jumping and crashing, provides them with the fix they need to help them be a little less energetic at home.  :-) Check out the pictures below and tell me if you think they had some sensory friendly fun.  :-) Gavin's discovered the joy of jumping off a swing.  It's taken him 13 years to make this discovery but better late than never.  Seriously though, he had a ton of fun but we have to watch that he doesn't overdo…

0 Comments

Operation Hope: Focusing on Gavin this week

This week is going to be focused mainly on Gavin. Our priority is getting him to his IVIG Infusion as soon as we get the date and time. We'll probably have that time at some point Monday morning. We are putting the whole week on hold until this is finalized. I'm not sure what else is on the agenda but I imagine it will be made clear as the week goes on. Hopefully, Monday will be gentle and we can all survive. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

0 Comments

Please Help Keep This Site Online

  I need help to keep this site online Lost and Tired has reached a point that I'm really struggling to cover server costs, not to mention everything else required to keep both Lost and Tired and the My Autism Help Forums online. I've outgrown 2 servers in the past year alone and will soon reach a point that another move will have to be made. The cost associated with maintaining this site have tripled in the last year as well. Beginning September 1st, 2013, monthly service fee's will be coming due. I had covered all the costs through September 2013, with a single, lump sum payment last year. August is it and I'm officially month to month with Bluehost now and if I can't cover the fee's, everything goes…

0 Comments

What I miss most about my life before becoming an #Autism parent

I've been an Autism Dad since 2005 and even prior.  My oldest just wasn't diagnosed until 2005. I'd like to say that our journey has been a smooth one bit that would be a lie. Along this journey, our two other children will be diagnosed as being on the Autism Spectrum as well. Our lives are very challenging but also rewarding. Most of all though, our lives are exhausting. Completely and utterly exhausting. However, knowing everything I know, I would still do it all again. The simple truth is that not a beat of my heart goes by that I don't desperately love my kids, challenges and all.  I would do anything for them as I already have, countless times. Having said that, there are things about my life prior…

32 Comments

Do your kids struggle with food sensitivity?

I was wondering if your kids with Autism have issues with food? Do they have a favorite that they eat almost exclusively? Don't feel bad, my kids are the same way. We've gotten to a point where we simply want them to eat, so if it's Ramon Noodles everyday, than so be it.  That doesn't mean that we don't try to expand their pallet. Unfortunately, sensory issues such as texture, color, smell, visual appearance, taste and even food touching other foods, inhibit progress in this department. Let's trade experiences and see if we can help each other, help our kids. :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me…

0 Comments

Story time with my #Autistic son and his dog

Something that I feel is extremely important for my kids is story time.  Gavin's not really interested and I suppose I wouldn't expect him to be.  Elliott and Emmett on the other hand are at an age where they love story time.  Yesterday, Emmett was having a rough time and Lizze suggested to him that he go pick out 4 of his favorite books and she'd read to him.  He did just that and was officially redirected. It was really cute because Bella wanted to participate and so she climbed up and joined them.  It actually appeared that she was paying attention to the story, as she sat attentively listening.  Do your kids like story time? This site is managed almost exclusively via WordPress for Android. Please forgive any typos as…

0 Comments

All Hell just broke loose: Update

Update: In a rather stunning duh moment, I neglected to share that from what I have been told, the puppy is doing okay. I don't know details as I haven't seen the dog since this whole thing happened yesterday. However, considering what that poor thing endured yesterday, I'll gladly accept "okay". I wanted to update you all as to what's happened since everything went down yesterday and we had our third vicious dog attack of the summer. I spoke with my neighbor and he informed me that the dog warden was out to visit the owners of the poor puppy that was viciously mauled by the male Blue Nose Pitbull yesterday afternoon. The dog warden will be coming back to deal with the owners of the violent, very, very dog…

3 Comments