I wanted to update everyone on a pretty significant change to Gavin's meds. One of the things that have been causing or contributing to Gavin's sleepiness in the mornings is…
Gavin started having chest pain a short while ago. His heart rate was bouncing between 56bpm and about 130bpm. That's definitely not a good thing. We have begun making plans…
I mentioned the other night that we had some more concerning news about Gavin's autonomic issues. His specialist at the Cleveland Clinic decided that the pros outweighed the constant when…
I wanted to let everyone know that despite the really rough start, Gavin's IVIG Infusion was successful. I want to thank his nurse for doing such an awesome job. With…
During our last appointment with Dr. Moodley at the Cleveland Clinic, there was a medication change that was scheduled to take place today. One of the treatments for Gavin's Autonomic…
Tonight we had a really bizarre occurrence that ended with me overwhelmed and freaking out. It started out with Gavin coming downstairs and asking if his vision getting blurry means…
We had a medication mixup. This post explains how things can happen, no matter how careful you are.
Gavin is teetering on the edge of having to go to the hospital. He just got home from hanging out with Grandma and most likely over did it. The really…
