Great News – Gavin’s 3rd Subcutaneous #IVIG Infusion was a Success
We went from freaking out and potential disaster to a major victory….
We went from freaking out and potential disaster to a major victory….
Gavin is in his room now and officially admitted. There's too many weird things going on to be comfortable sending him home, without watching him overnight at the very least.…
We are definitely dealing with an Autonomic Crisis. Gavin just got out of CT, after having a scan to determine if they need contrast for him pending MRI. There are…
I feel so lost right now and I don’t know what to do anymore
We just got back from Gavin's MRI. He did fantastic and I'm so proud of him. For MRI took about an hour and he broke down sobbing towards the very…
Gavin just tried to destroy his desk in a rage
We survived a massive fit tonight and boy was it loud
First of all, I want to thank all of you for your thoughts and prayers today. This has been a really, really long day. Gavin has had the last of…