There is a section of his Math homework that is actually testing his ability to read the directions. The questions are simple and the answers are pretty obvious and located directly in the directions.

It’s not easy to be positive, at least for me. That being said, I need to focus on what I’m going to do to make this better and being negative about all of this isn’t going to help me do that.

In the last two years, he’s lost his immune system, been diagnosed with epilepsy and developed severe Autonomic Dysfunction. Now he’s losing weight and becoming increasingly more medically fragile. This weight thing has me pretty freaked out because even though his caloric intake has increased this year, he’s still losing weight.

Please know going into this post that I blame only myself for what I’m about to share. I’m not proud of this but it’s a pretty big deal and there’s no way to deny the impact this is going to have on my family.

It’s 3am and Emmett just finished having a massive meltdown, that woken the entire house (except Gavin).

One of the things I’m hoping for right now is for yesterday’s infusion to help him finally kick this respiratory bug he’s had for almost 2 weeks now.

We were at Akron Children’s Hospital all day. We got there around 8:30am and finally got home around 5pm….. It was such a long day, full of anxiety, fear, stress and pure emotional drain.

I’m so overwhelmed and can’t even explain what I feel right now because my brain is on complete overload and I’m literally shaking.