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The tension is mounting already

I realize that this will sound cliché but you can cut the tension in our home with a knife. Gavin's been home for two days now and to say that…

A father’s breaking heart

I had this great plan to have this video blog up and ready for you all this morning and due to technical issues, that's been delayed by a few hours. …

The end of an emotional day

I know a lot of you are probably wondering how today's trip to the Cleveland Clinic went. Rather than try to put into words everything that has happened over the…

Despite horrible traffic, we’ve arrived at the @ClevelandClinic

After a drive that felt like it would never end and several missed elevators, we've finally made it to the Cleveland Clinic for Gavin’s appointment in the autonomic clinic. Wish…

Confessions of an #Autism Dad: I wouldn’t wish this pain on anyone

Today hasn't gone as planned. Elliott's home because of a nasty cough that we need to watch and stay on top of. He also seems to be dealing with another…

Thank you for your love and support

I wanted to thank you all for your love and support today. This has been a really rough day and I'm completely burned out. Gavin is doing pretty well and…

Autonomic Crisis: Stable-ish and home again

After a few hours in the ER at Akron Children's Hospital, Gavin was stable enough to be released. We opted to reschedule his IVIG infusion so as not to push…

Autonomic Crisis: Just in the nick of time

I just arrived to the ER and have gotten settled in and up to speed. My mom picked me and Emmett up and I dropped them off at her house. …