2012 hasn't even arrived yet and we are facing new and frightening challenges. Gavin is continuing to decline and he is presenting with new symptoms. His current list of confirmed…

We have arrived and been checked into Akron Children's Hospital.  Gavin is sitting in bed watching TV.  We have talked with the first doctor,  and I think we overwhelmed him. …

I am currently at therapy tonight with Gavin and Elliott.  I believe this is the very last therapy appointment for 2011. It's been a very long road but we have…

Gavin is driving me absolutely crazy. He will not stop talking and is doing everything in super fast mode. He doesn't appear all there today. I'm trying to be as…

I'm currently sitting at therapy with Gavin. He has OT,  PT and speech therapy today,  back to back to back. Every Monday,  I sit here for at least 1.5 hours…

I've only been up for a short time and already Gavin has managed to ask me the same question,  over and over and over and over.  To his credit,  at…

Gavin just came downstairs to tell me that he just had a scary thought.  Scary Thoughts are Gavin's way of describing his visual hallucinations. He told me that he was…

Screaming.  That's all I have heard this weekend.  Between Elliott whining,Emmett screaming and Gavin melting down,  the little bits of sanity I had left are now refugees fleeing to safety…