Lizze and I have found ourselves back in a place where we have to make decisions about Gavin's life that simply aren't always black and white. Gavin has an extraordinary…
I wanted to let everyone know a big thing happened while we were at Gavin's immunologist last week. I already mentioned how we discussed his labs and why his numbers…
We have a lot of catching up to do in regards to Gavin. Now that the server is up and running, I can finally do that. Gavin had his immunologist…
I'm still unable to reach the nurse who let's me know Gavin's lab results, but I do have something to share in the meantime. I received two followup calls from…
This afternoon has turned into a giant cluster fuck. It's not a huge deal but it is stressful to have constant changes made to our schedule. We were getting ready…
We head into today, unaware of what it's going to bring us in regards to Gavin's and his ever changing health. It's a somewhat busy schedule today. I need to…
Gavin's labs have been drawn and I'm waiting to get the results. I'm cautiously optimistic about today's numbers because yesterday they were coming back up. In the meantime, I need…
Gavin's been having a rough couple of days, especially at night. In many ways, he's his own worst enemy. He gets himself all worked up and then he can't settle…