Here’s what we’ve learned so far today

I’m still unable to reach the nurse who let’s me know Gavin’s lab results, but I do have something to share in the meantime. I received two followup calls from Gavin’s immunologist’s office this morning. 

The first was to check and see how he was doing today. They also wanted to find out his lab results from Friday. I’d forgotten to relay those to them Friday’s afternoon. I was too distracted and I screwed the pooch on that one. 

I received the second call after his doctor heard the results of his labs. She wanted him scheduled and seem with her as soon as possible. She’s not liking the fluctuating levels, and frankly, neither do we. 



We will be driving him to a Cleveland on Thursday and from there, figure out what we need to do. 

I have a suspicion that she’s going to make changes to his IVIG Infusions. My guess is that they will either increase in frequency throughout the week, or we will be going back to the infusion lab at Akron Children’s Hospital. 

Lastly, she’s going to refer us to hematology and oncology as well. 

That’s what I know at the moment, but I’ll share more as information becomes available. 

Until then, please keep Gavin in your thoughts and prayers.. ☺ 

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