Moments in #Autism parenting

Question

What do you personally struggle with as an Autism parent?

Sleep

Finances

Sanity

Stress

Work

Insurance

Answer 1

Watching my kids struggle

Answer 2

Personal relationships

Answer 3

My biggest struggle is access to local autism resources and programs... They are IMPOSSIBLE TO FIND!!!

Answer 4

Understanding what causes my child's behaviour- as sometimes it's autism sometimes it's not . And the processing delay there's bad behaviour but the cause is unraveled so much later

Answer 5

Social Isolation. We rarely go ou as a couple because we do not want the looks or critisim from others. Also it is much easier to stay at home where our little one is more comfortable.

Answer 6

School; they are hurting where they should be helping and my child is not getting the education they deserve.

Answer 7

I as an aspergian child struggled with the incompetence of my neurotypical parents, stop making this all about you!

Answer 8

I was interested in reading your Paxil experience since I'm withdrawing too. From 80mg 1xday to my doc letting me run out and giving me no options for refills anywhere with anyone. Had seizures for hours last night. Be careful, you have kids and I don't! Good luck to you...

Answer 9

Non-existent services or support for adults with autism.

Answer 10

The ableism and cruelty of this world.

Answer 11

Executive Functioning

Answer 12

Varies...Diagnosed with severe narcolepsy so sleep schedule is nuts. Up for a couple of days sometimes. Sleep standing...9 stiches in lip, broken nose/concussion from another fall. By the grace of God, my 10 yr old daughter with autism (severe) finally decided she loves to go to bed!?!? Took some work and a lot of persistence! Think I developed PTSD from her sleep habits (15+/- mins at a time). Earlier ?/past•••life before autism/epilepsy/frustration/self harm/plain ole hard as hell at times?? Miss the hell out of it. However, would I go back to that time before my precious girl?? Absolutely not! Will I have questions for God when I meet Him face to face? At least 1... Why? Why did You do that to her?

Answer 13

Enough, but it’s broken sleep: often interrupted because my son/daughter needs assistance

Answer 14

My son still hasn't slept through the night as 4.5yrs (though we are making great progress after his OSA dx and treatment). We get up every 30 min to 2hrs typically and that usually amounts to a total of 4 hours for me and 6-8hrs for him.

Answer 15

Not enough for nearly 30 years. respite care is good, but I feel awkward leaving her.

Moments in #Autism parenting

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