Perception: One reason why being an #Autism parent is so hard  

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This is a perfect example of why we can’t take what he tells us as being accurate. 

Was he bleeding? Sure..  Was he bleeding like nuts?  Not even almost… 

Having experienced this with Gavin again sorta got my brain thinking of all the times we reacted to what he told us happened. 

We were recently in the emergency room with Gavin because he first said he had pooped blood but later insisted he’d actually peed blood instead. He told us that the toilet was full of blood and so we panicked and ended up in the emergency room for a few hours, only to find out that there was absolutely no blood in his urine. There wasn’t even trace amount of blood. 

Did Gavin lie to us? That’s a complicated question but no, I don’t think he’s lying to us. I think it’s the way he’s perceiving the world around him. 

Nevertheless, I can’t begin to explain how frustrating this kinda stuff is. It’d be one thing if he was intending to deceive us but Lizze and I don’t think that’s what he’s doing. This is all about his perception of what he’s experiencing and what he perceives as his experience is oftentimes very different from what actually happened. 

Please tell me there’s someone else out there going through something similar and can relate to this. Sometimes I feel like I’m going fucking crazy. 

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Wendi

Can’t QUITE put our finger on…sorry.

Kim Gebhardt

I feel like this has zero to do with autism and everything to do with all kids (and some adults). Kids are incredibly hyperbolic. They are always starving to death or ate an entire box of cereal or fell from 100 feet in the air or, in this case, bleeding like crazy. The blessing for most parents is that they know their kids are bragging and/or exaggerating, whereas with Gavin, some of the things he talks about could actually be happening. I don’t know that there is an easy answer to this type of problem other than keeping an eye on him every minute of the day, which would be sure to drive both you and him crazy.

Wendi

Hi Rob. I’m Wendi from SC, and my 9 year old daughter has autism (really Asperger’s), along with ADHD, ODD, and Tourette’s. My husband and I believe that she also has some other type of underlying comorbid issue going on, or at the very least developing, that we can’t out our finger on.

I know our situation is vastly different from yours, but we also have that perception problem with her. We never quite know what to believe. Just wanted to say that you are not alone in that department.

Kim Gebhardt

I feel like this has zero to do with autism and everything to do with all kids (and some adults). Kids are incredibly hyperbolic. They are always starving to death or ate an entire box of cereal or fell from 100 feet in the air or, in this case, bleeding like crazy. The blessing for most parents is that they know their kids are bragging and/or exaggerating, whereas with Gavin, some of the things he talks about could actually be happening. I don’t know that there is an easy answer to this type of problem other than keeping an eye on him every minute of the day, which would be sure to drive both you and him crazy.

paulinabisson5

That’s one of the reasons we have the cameras setup. We can keep an eye on him from anywhere and it’s a also a two way intercom system as well.

It helps us to gather more information without relying on what he has to tell us.. It’s sucks but we try to employ anything that can help…

Wendi

Can’t QUITE put our finger on…sorry.

Wendi

Hi Rob. I’m Wendi from SC, and my 9 year old daughter has autism (really Asperger’s), along with ADHD, ODD, and Tourette’s. My husband and I believe that she also has some other type of underlying comorbid issue going on, or at the very least developing, that we can’t out our finger on.

I know our situation is vastly different from yours, but we also have that perception problem with her. We never quite know what to believe. Just wanted to say that you are not alone in that department.

paulinabisson5

Wendi,
It’s so nice to meet you. I feel your pain here and I understand how this kind of perception issue can make an already challenging life, more challenging.

Thanks for reaching out and reminding me that I’m not alone. I truly appreciate it. Please remember that I’m always here if you or your husband need anything.. ☺️